CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 903

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1873-C19722	C19722	Laboratory procedure glycosylated hemoglobin value	Subject/Particpants amount of Glycosylated Hemoglobin (Hemoglobin A1c) in the blood	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20222	C20222	Mitochondrial disease alternative medicine treatment improve GI problem text	The free text field to specify about what alternative medicines made the participant's/subject's GI problems better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19565	C19565	Blood Pressure measurement	Blood pressure measurement with systolic measurement over diastolic measurement	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20057	C20057	Mitochondrial disease vomit episode trigger indicator	Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19603	C19603	Genetic test clinical evaluation type	The type of basis for the evaluation of the clinical category of genetic test	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21858	C21858	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score	Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20007	C20007	Bone fracture text	The free-text field related to having a bone fracture	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20105	C20105	Mitochondrial disease prior GERD heartburn mid-line chest pain esophogeal burning frequency	The frequency of the participant/subject's prior GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1873-C19730	C19730	Laboratory procedure microalbumin urine value	Subject/Participant's amount of microalbumin in urine	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C58646	C58646	Imaging phase partial Fourier ratio text	Text field for recording the partial Fourier ratio used	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20192	C20192	Mitochondrial disease swallow air indicator	Indicator of whether participant/subject are air swallowers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20152	C20152	Mitochondrial disease esophagus diagnosis ever type	The type of esophageal disorder with which the participant/subject has ever been diagnosed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20281	C20281	Emergency room use other diabetes related past year count	The count of the times the participant/subject used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19619	C19619	Weight length Z Score	The number of standard deviations the measured weight/length of the subject/participant is above the mean	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20200	C20200	Mitochondrial disease bowel movement frequency type	Select the participant's/subject's bowel movement frequency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20034	C20034	Mitochondrial disease person relationship category	The type of relationship of participant/subject to family member with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20160	C20160	Mitochondrial disease abdominal pain frequency other text	The free text field to specify frequency of participant's/subject's other abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20289	C20289	Urgent care clinic use past year indicator	The indicator of whether the participant/subject has used after-hours or urgent care clinic other than the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19632	C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20208	C20208	Mitochondrial disease stool blood amount result	The result of blood in the stool, as an amount	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20042	C20042	Mitochondrial disease restrict diet indicator	Indicator of whether participant/subject are on a restricted diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20168	C20168	Mitochondrial disease abdominal pain worsen text	The free text field to specify about what specifically makes the participant's/subject's abdominal pain worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20297	C20297	Hospital admission hypoglycemia past year count	The count of the times the participant/subject was admitted to hospital for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C20000	C20000	ECG QRS axis degree value	The degree value for QRS axis (the direction in which the mean QRS current flows) for the electrocardiogram (EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20128	C20128	Mitochondrial disease burp occur specific drink food indicator	Indicator of whether participant's/subject's burping occurs with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 76 - 100 of 903

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.