CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60285 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn relief text

The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom relief

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59872 Vestibulo-ocular reflex symmetry measurement

Measurement of the vestibulo-ocular reflex (VOR) symmetry captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59734 Lactose intolerant indicator

Indicator of whether that the participant is lactose intolerant

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59975 Blood pressure systolic oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59833 Electrocochleography type

Type of electrocochleography test

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C21881 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task test type

Type of experimental task, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C54285 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Delayed memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Delayed Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59161 Genotype platform name

Name of the genotype platform

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60077 Imaging cavitation anatomic site

Anatomic site of the cavitation found in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60023 Blood pressure diastolic trial other timepoint measurement

Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59880 Maximum sway excursion backward right percent value

Value of the percent of maximum sway excursion in a backward right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60077 Imaging cavitation anatomic site

Anatomic site of the cavitation found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59742 Bone fracture confirmed medical record indicator

Indicator of whether the participant had their fracture confirmed in medical record

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59983 Rate pressure product ventilatory absolute threshold value

Value of the Rate Pressure Product at the attainment of the ventilatory anaerobic threshold (VAT), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59840 Ocular motor assessment type

Type of ocular motor assessment performed

Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59767 Medical office visit diabetes past year count unknown status

Status related to count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months is unknown

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60031 Heart submaximal absolute trial end rate

Heart rate, in beats per minute (BPM), at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59888 Vestibular head impulse test vertical canal plane type

Type of planes for the vertical canals in vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60146 Imaging computed tomography number

Number distinguishing the computed tomography (CT) session from other sessions

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59991 Breathlessness oxygen uptake peak measure Borg scale

Scale value of breathlessness measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59848 Positional test head right status

Status of the participant's eye movement in a head right facing position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Mitochondrial Disease Mitochondrial Disease
C59701 Pregnancy other outcome comment text

The free-text field describing the other comments and outcomes of a pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C59775 Hypoglycemia diagnosis reason

Reason for hypoglycemia diagnosis

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.