CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52350 12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score

Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54265 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type

Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60177 Imaging voxel 2 same location indicator

Indicator of whether voxel 2 is in the same location as voxel 1

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60043 Respiratory exchange ratio trial recovery start value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60158 Imaging hemorrhage lobe anatomic site specify text

Free-text field to specify name of the lobe where the hemorrhage is located

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60003 Heart trial start rate

Heart rate, in beats per minute (BPM), at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60273 Mitochondrial disease infant formula choose reason text

The free-text field to specify the reason an infant formula was chosen

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59860 Cervical vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59722 Medication depo-provera current indicator

Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59698 Dietary supplement dose unit of measure

Unit of measure for the dose of the dietary supplement the participant is taking

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C54273 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score

Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C21858 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score

Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60166 Imaging brain atrophy status

Status of brain atrophy found in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60011 Work trial other timepoint elapsed time minute count

Count in elapsed minutes of the work trial at which data is collected for the other timepoint

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59868 Angular rotation frequency

Frequency of angular rotation used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing (RVT)

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59730 Medication romusuzumab indicator

Indicator of whether the participant is or has ever taken romusuzumab (Evenity)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59971 Oxygen end tidal partial pressure oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59829 Auditory steady state response threshold measurement

Measurement of the hearing threshold obtained by auditory steady state response (ASSR)

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C21891 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type

Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59116 Genetic study data array data category type

Type of array data category data expected for the genetics study

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60073 Imaging diffusion-weighted imaging white matter normality status

Status related to whether the white matter appears normal or abnormal on diffusion-weighted imaging DWI

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60019 Tidal volume body temperature pressure saturate trial other timepoint measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.