CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 76 - 100 of 1834

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3132-C60215	C60215	Imaging cervicomedullary junction lesion indicator	Indicator of whether cervicomedullary junction lesion is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60124	C60124	Dual X-ray absorptiometry distal one-third radius bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59930	C59930	Oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 to predicted peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59788	C59788	Tympanometry assessment status	Status indicating that tympanometry was not assessed	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60055	C60055	Participant subjective status trial 2 end text	The free-text field capturing the participant's description of how they felt at the conclusion of the second exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60237	C60237	Metabolomic type	Type of metabolic testing performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60325	C60325	Mitochondrial disease first pancreatitis episode age value	Value for the participant's age at the first pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59890	C59890	Time ventilatory anaerobic threshold elapse minute total count	Count of total elapsed minutes at which the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59754	C59754	Insulin premix dose	Dose of premix insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54628	C54628	Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56417	C56417	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale 2 T score sum value	The sum of two of the subject's T scores (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3132-C60223	C60223	Imaging other incidental finding tumor text	The free-text field related to 'other incidental finding type' specifying tumor	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60132	C60132	Dual X-ray absorptiometry R1 lateral distal femur bone mineral content z score	Z-score of the amount of bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C60354	C60354	Forced vital capacity percent predict normal value	Value as a percentage of the predicted normal value of Forced Vital Capacity (FVC) to grade the severity of the abnormality, where FVC is maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59938	C59938	Respiratory exchange ratio ventilatory anaerobic threshold value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59796	C59796	Tympanometry middle ear resonance estimate measurement	Measurement of the estimated middle ear resonance obtained by tympanometry	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60333	C60333	Mitochondrial disease pancreatitis hospitalize indicator	Indicator of whether the participant was hospitalized for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59898	C59898	Work oxygen uptake peak predict value	Value predicted for instantaneous work, in watts, at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59762	C59762	Medication diabetes GLP-1 agonist status	Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54248	C54248	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3090-C60187	C60187	Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine depletion level measurement	Measurement, as a percentage of rest, of the approximate level of phosphocreatine (PCr) depletion in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60293	C60293	Mitochondrial disease swallow pain indicator	Indicator of whether the participant has pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56425	C56425	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value	The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3088-C60088	C60088	Imaging post processing analysis method software provided type other text	The free-text field related to 'Imaging post processing analysis method software provided type', specifying the source providing the software for imaging post processing and analysis	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60140	C60140	Dual X-ray absorptiometry R3 lateral distal femur bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 76 - 100 of 1834

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.