CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59789 Audiometry test not perform text

Free-text field describing why an audiometry test was not performed

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60056 Participant subjective status trial 2 next day text

The free-text field capturing the participant's description of how they felt the day following the second exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60238 Vitamin level test type

Type of vitamin levels tested

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60326 Mitochondrial disease last pancreatitis episode age value

Value for the participant's age at the last pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59891 Time oxygen uptake peak elapse minute total count

Count of total elapsed minutes at which the participant's oxygen uptake (VO2) measurement peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60286 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn season variation text

The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom seasonal variation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60357 Imaging spinal cord lesion anatomic site type

Type of spinal cord anatomic site where lesions were found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60133 Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59939 Respiratory exchange ratio oxygen uptake peak value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the attainment of peak VO2 during the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59797 Acoustic reflex test perform status

Status of whether acoustic reflex testing was performed

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60334 Mitochondrial disease pancreas imaging study indicator

Indicator of whether the participant had an imaging study of their pancreas

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59899 Work submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the work (in watts) generated during the Submaximal Absolute Trial to the instantaneous work (in watts) being generated at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60188 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine spectra collect indicator

Indicator of whether phosphocreatine spectra was collected in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C60294 Mitochondrial disease swallow pain onset age category

Category of the participant's age at onset of pain with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60089 Imaging post processing analysis method software leakage correction indicator

Indicator of whether software-based leakage correction method was used for imaging post processing and analysis

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60141 Dual X-ray absorptiometry R3 lateral distal femur areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59947 Oxygen uptake heart rate submaximal absolute trial ratio value

Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60192 Imaging spine multiple timepoint magnetic resonance imaging perform status

Status related to whether multiple timepoint spine magnetic resonance imaging (MRI) sessions have been performed on the participant

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59805 Audiometry transducer type

Type of transducer used for audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60101 Calcium supplement received past 24 hours oral indicator

Indicator of whether an oral calcium supplement was received in the past 24 hours by the participant

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59907 Tidal volume body temperature pressure saturate oxygen uptake peak measurement

Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60351 Sleep stage 4 average duration

Duration of average time in sleep stage 4 during the recording period

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60302 Mitochondrial disease choke liquid indicator

Indicator of whether the participant chokes with liquids

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60097 Imaging post processing analysis method quantitative indicator

Indicator of whether quantitative method was used for imaging post processing and analysis

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59745 BMI diabetes diagnosis category

Category of the participant's BMI (body mass index) at the time of diabetes diagnosis

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.