CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2383-C54271	C54271	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Standardization sample difference frequency	Frequency of difference in standardization sample, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form B	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3126-C59781	C59781	Otoscopy pre-auricular region abnormal type other text	The free-text field related to 'Otoscopy pre-auricular region abnormal type', specifying other text. Type of abnormal otoscopy finding for the pre-auricular region	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60048	C60048	Blood oxygen saturation trial recovery start measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60230	C60230	Cardiac evaluation type other text	The free-text field related to 'Cardiac evaluation type', specifying other text. Type of cardiac evaluation performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60318	C60318	Mitochondrial disease prior abdominal pain reason other text	The free-text field related to 'Mitochondrial disease prior abdominal pain reason', specifying other text. Reason describing the past indication that the participant experienced abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59747	C59747	Glycosylated hemoglobin measure method type	Type of method used to measure glycosylated hemoglobin (HbA1C)	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54617	C54617	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index score name	Name of the scale or index being scored, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56410	C56410	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score	The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3132-C60216	C60216	Imaging normal thoracic spine indicator	Indicator whether the thoracic spine Magnetic Resonance Imaging (MRI) is normal	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60125	C60125	Dual X-ray absorptiometry distal one-third radius areal bone mineral density value	Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59931	C59931	Carbon dioxide output submaximal absolute trial measurement	Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59789	C59789	Audiometry test not perform text	Free-text field describing why an audiometry test was not performed	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60056	C60056	Participant subjective status trial 2 next day text	The free-text field capturing the participant's description of how they felt the day following the second exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60238	C60238	Vitamin level test type	Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60326	C60326	Mitochondrial disease last pancreatitis episode age value	Value for the participant's age at the last pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59891	C59891	Time oxygen uptake peak elapse minute total count	Count of total elapsed minutes at which the participant's oxygen uptake (VO2) measurement peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59755	C59755	Insulin inject difficult status	Status related to difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54629	C54629	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score	Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60286	C60286	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn season variation text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom seasonal variation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56418	C56418	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid type	The type of visual or hearing aid or aids that the examinee needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3132-C60357	C60357	Imaging spinal cord lesion anatomic site type	Type of spinal cord anatomic site where lesions were found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60133	C60133	Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density value	Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59939	C59939	Respiratory exchange ratio oxygen uptake peak value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the attainment of peak VO2 during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59797	C59797	Acoustic reflex test perform status	Status of whether acoustic reflex testing was performed	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60334	C60334	Mitochondrial disease pancreas imaging study indicator	Indicator of whether the participant had an imaging study of their pancreas	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.