CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59757 Insulin inject difficult type other text

The free-text field related to 'Insulin inject difficult type', specifying other text. Type of difficulty injecting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C60288 Mitochondrial disease swallow difficult indicator

Indicator of whether the participant has difficulty with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56420 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid glasses used indicator

The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60135 Dual X-ray absorptiometry R2 lateral distal femur bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C20248 Imaging scanner manufacturer name text

The free-text field related to name of manufacturer of imaging scanner

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C60247 Biomarker genetic assessment type other text

The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59167 Genotype platform description text

The free-text field describing the genotype platform

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60082 Imaging brain abnormal enhancement indicator

Indicator of whether there is abnormal enhancement in the brain imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60028 Oxygen uptake unit mass submaximal absolute trial end measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59885 Vestibular head impulse test type

Type of vestibular head impulse testing performed

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60143 Imaging brain computed tomography perform multiple status

Status related to whether multiple brain computed tomography (CT) imaging sessions have been performed on the participant

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59988 Breathlessness rest Borg scale

Scale value of breathlessness at rest using the Borg Scale

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59845 Ocular motor assessment spontaneous test eye close status

Status of the participant's spontaneous ocular motor testing with eyes close

Supplemental-Highly Recommended Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59772 Hypoglycemia feed change indicator

Indicator of whether any changes in feeding due to hypoglycemia have been made

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C60253 Diagnosis primary mitochondrial disease support sign type

Type of sign supportive of primary mitochondrial disease diagnosis

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C54258 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value

Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60170 Imaging acute metabolic crisis indicator

Indicator of whether the imaging study was done during an acute metabolic crisis

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60036 Blood pressure systolic submaximal absolute trial end measurement

Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60151 Imaging axial plane slice orientation text

Free-text field describing the axial plane slice orientation (e.g., parallel to the OML, parallel to the hard palate, etc.)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C59996 Leg fatigue oxygen uptake peak measure Borg scale

Scale value of leg fatigue measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59853 Positional test left status

Status of the participant's eye movement in a static left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59714 Sex steroid deficiency diagnosis indicator

Indicator of whether the participant has been diagnosed with sex steroid deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.