CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20176 Mitochondrial disease prior abdominal pain frequency

The frequency with which the participant/subject had prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19569 Biomarker genetic assessment type

The types of genetic biomarker from the speciment that were evaluated

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20305 Hospital admission not diabetes related past year total day count

The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons not related to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20136 Mitochondrial disease prior burp specific drink food indicator

Indicator of whether participant's/subject's past burping occurred with specific drinks or food

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20264 Diabetic ketoacidosis emergency past year count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20216 Mitochondrial disease medication other text

The free text field to specify the participant's/subject's other medications

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20184 Mitochondrial disease prior abdominal pain improve text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20248 Imaging scanner manufacturer name text

The free-text field related to name of manufacturer of imaging scanner

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C21849 Brief Test of Adult Cognition by Telephone (BTACT) - Median latency time lapse millisecond measurement

Median latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C19722 Laboratory procedure glycosylated hemoglobin value

Subject/Particpants amount of Glycosylated Hemoglobin (Hemoglobin A1c) in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20106 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C19603 Genetic test clinical evaluation type

The type of basis for the evaluation of the clinical category of genetic test

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20066 Mitochondrial disease vomit prior abdominal pain indicator

Indicator of whether participant/subject experiences abdominal pain before vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19579 Weight length infant measurement

Weight/Length measurement for infants less than 24 months

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20318 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment anatomic site

The anatomic site in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C21867 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task reverse baseline score

Total number correct in reverse baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C19730 Laboratory procedure microalbumin urine value

Subject/Participant's amount of microalbumin in urine

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20114 Mitochondrial disease oral regurgitation occurrence timing type

The type of timing of the participant/subject's episodes of oral regurgitation with respect to meals

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19614 DNA change text

Text on DNA change

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease vomit time period frequency other text

The free text field to specify how often the participant/subject vomited in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C21897 Brief Test of Adult Cognition by Telephone (BTACT) - Total intrusion count

Total Number of intrusions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20122 Mitochondrial disease prior oral regurgitation occurrence timing type

The type of timing of the participant/subject's prior episodes of oral regurgitation with respect to meals

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.