CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60268 Genetic test experimental validation type other text

Free-text field related to the 'Genetic test experimental validation type other text', specifying the experimental validation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59926 Oxygen uptake ventilatory anaerobic threshold measurement

Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59784 Otoscopy external auditory canal abnormal type

Type of abnormal otoscopy finding for the external auditory canal

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60051 Perceived exertion trial recovery start Borg scale

Scale value of perceived exertion (PE) using the Borg Scale at the beginning of the trial recovery period

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60233 Endocrine test type

Type of endocrine test performed

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60321 Mitochondrial disease pancreatic diagnose indicator

Indicator of whether the participant has been diagnosed with pancreatic disease

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C57112 Start exercise time

Time of the start of exercise

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59760 Medication diabetes sulfonylurea status

Status related to the use of sulfonylurea medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C60219 Imaging conus medullaris enhancement indicator

Indicator of whether conus medullaris enhancement is found in the imaging study

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C60128 Dual X-ray absorptiometry ultradistal radius bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the ultradistal radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C59934 Carbon dioxide output oxygen uptake peak predict value

Predicted value, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at peak oxygen uptake (VO2) during the trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C54617 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index score name

Name of the scale or index being scored, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59792 Tympanometry ear canal volume measurement

Measurement of ear canal volume obtained by tympanometry

 Core Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60241 Biomarker cerebrospinal fluid assessment type other text

The free-text field related to 'Biomarker cerebrospinal fluid assessment type', specifying other text. Type of biomarker assessed from cerebrospinal fluid (CSF) samples

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60329 Mitochondrial disease recurrent acute pancreatitis indicator

Indicator of whether the participant had recurrent acute pancreatitis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59894 Time exclude rest oxygen uptake peak elapse minute count

Count of total elapsed minutes, excluding rest time, at which the participant's oxygen uptake (VO2) measurement peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C56410 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score

The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C60289 Mitochondrial disease swallow difficult onset age category

Category of the participant's age at the onset of difficulty with swallowing

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60136 Dual X-ray absorptiometry R2 lateral distal femur bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C59942 Heart rate ventilatory anaerobic threshold measurement

Measurement, in beats per minute (BPM), of the heart rate when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C54629 Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score

Score for the Infrequency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C21878 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score

Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C60062 Imaging diffusion-weighted imaging sequence type

Type of sequence used for diffusion-weighted imaging (DWI)

 Core Spine Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
Displaying 376 - 400 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.