CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59692 Lab bone marker turnover test name

Name representing the bone turnover marker test that was performed

 Supplemental Labs of Bone Mineral Metabolism False Mitochondrial Disease Mitochondrial Disease
C59999 Oxygen uptake trial start measurement

Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59856 Caloric irrigation asymmetry percent value

Value of the percent of asymmetry associated with caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59718 Medication steroid IV current indicator

Indicator of whether the participant is taking any steroids by IV

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C59700 Pregnancy self or contribute sperm status

Status related to whether the participant has ever been pregnant or contributed sperm to a pregnancy

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C59774 Hypoglycemia cause indicator

Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54260 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type

Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60162 Imaging cortical malformation frontoparietal anatomic site specify text

Free-text field to specify location of the anatomic site where cortical malformations appear in the frontoparietal region of the brain

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C60061 Imaging contrast agent dose unit of measure

Unit of measure for the dose of contrast agent used for the imaging scan

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C60007 Blood oxygen saturation trial start measurement

Measurement, as a percentage, of blood oxygen saturation (SpO2) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59864 Ocular vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59726 Medication bisphosphonate current indicator

Indicator of whether the participant is currently taking any bisphosphonates (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate)

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C59967 Carbon dioxide end tidal partial pressure oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C52353 12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score

Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60069 Imaging striatum normality status

Status related to whether the striatum appears normal or abnormal in the imaging study

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C21845 Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test correct response count

Number of correct responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C60015 Carbon dioxide trial other timepoint measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the specified timepoint during the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59872 Vestibulo-ocular reflex symmetry measurement

Measurement of the vestibulo-ocular reflex (VOR) symmetry captured during testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59734 Lactose intolerant indicator

Indicator of whether that the participant is lactose intolerant

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C60276 Mitochondrial disease prior special diet type

Type of specialized diet the participant has been on in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59975 Blood pressure systolic oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59833 Electrocochleography type

Type of electrocochleography test

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 326 - 350 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.