CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 301 - 325 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C59921	C59921	Oxygen uptake peak unit mass measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of peak oxygen uptake (VO2) during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60180	C60180	Imaging slab slice level anatomic site other text	The free-text field related to 'Imaging slice level anatomic site', specifying other text. Anatomic site of the slab/slice level	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59779	C59779	Otoscopy cannot assess text	Free-text field explaining why an anatomic site could not be assessed by otoscopy	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60228	C60228	Clinic assessment type other text	The free-text field related to 'Clinic assessment type', specifying other text. Type of clinical assessment performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60316	C60316	Mitochondrial disease fiberoptic endoscopic evaluation of swallowing indicator	Indicator of whether the participant has had a fiberoptic endoscopic evaluation of swallowing (FEES) procedure	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59745	C59745	BMI diabetes diagnosis category	Category of the participant's BMI (body mass index) at the time of diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56408	C56408	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score	The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3132-C60214	C60214	Imaging current prior result status	Status, present or prior, of participant's imaging results	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60123	C60123	Dual X-ray absorptiometry distal one-third radius bone mineral content value	Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59929	C59929	Oxygen uptake submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of oxygen uptake (VO2) during the Submaximal Absolute Trial to peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59787	C59787	Otoscopy tympanic membrane abnormal type other text	The free-text field related to 'tympanic membrane abnormal type', specifying other text. Type of abnormal otoscopy finding for the tympanic membrane	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60054	C60054	Participant subjective status trial 1 next day text	The free-text field capturing the participant's description of how they felt the day following the first exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60236	C60236	Hepatic panel type other text	The free-text field related to 'Hepatic panel type', specifying other text. Type of hepatic panel test performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60324	C60324	Mitochondrial disease pancreatitis episodes duration text	The free-text field to specify the duration of the participant's pancreatitis episodes occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59889	C59889	Time submaximal absolute trial complete elapse minute total count	Count of total elapsed minutes at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59753	C59753	Insulin neutral protamine hagedorn dose	Dose of neutral protamine hagedorn (NPH) insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54627	C54627	Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score	Score for the Negativity Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59873	C59873	Step acceleration test 60 degree per second condition type	Type of 60 degree per second step acceleration condition tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59735	C59735	Calcium supplement indicator	Indicator of whether the participant is taking a calcium supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59976	C59976	Blood pressure systolic submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of systolic blood pressure (BP) during the Submaximal Absolute Trial to systolic BP at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59834	C59834	Electrocochleography perform status	Status of whether electrocochleography was performed	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21897	C21897	Brief Test of Adult Cognition by Telephone (BTACT) - Total intrusion count	Total Number of intrusions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59163	C59163	Genotype platform version text	The free-text field to specify the genotype platform version	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60078	C60078	Imaging cortical involve type	The type of cortical involvement observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.