CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C57112 Start exercise time

Time of the start of exercise

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59750 Blood glucose test method type

Type of method used to test blood glucose

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54620 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result percentage value

Percentile value of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C56413 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score

The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60219 Imaging conus medullaris enhancement indicator

Indicator of whether conus medullaris enhancement is found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60128 Dual X-ray absorptiometry ultradistal radius bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the ultradistal radius

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59934 Carbon dioxide output oxygen uptake peak predict value

Predicted value, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at peak oxygen uptake (VO2) during the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59792 Tympanometry ear canal volume measurement

Measurement of ear canal volume obtained by tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60241 Biomarker cerebrospinal fluid assessment type other text

The free-text field related to 'Biomarker cerebrospinal fluid assessment type', specifying other text. Type of biomarker assessed from cerebrospinal fluid (CSF) samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60329 Mitochondrial disease recurrent acute pancreatitis indicator

Indicator of whether the participant had recurrent acute pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59894 Time exclude rest oxygen uptake peak elapse minute count

Count of total elapsed minutes, excluding rest time, at which the participant's oxygen uptake (VO2) measurement peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59758 Medication diabetes not insulin current former indicator

Indicator of whether the participant is currently taking or has previously taken any diabetes medication other than insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54632 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale protocol classification category

Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C60289 Mitochondrial disease swallow difficult onset age category

Category of the participant's age at the onset of difficulty with swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56421 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator

The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60136 Dual X-ray absorptiometry R2 lateral distal femur bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59942 Heart rate ventilatory anaerobic threshold measurement

Measurement, in beats per minute (BPM), of the heart rate when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60062 Imaging diffusion-weighted imaging sequence type

Type of sequence used for diffusion-weighted imaging (DWI)

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59800 Acoustic reflex threshold measurement

Measurement of the acoustic reflex threshold

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C60248 Biomarker specimen other source text

Free-text field specifying the other biomarker(s) assessed from specimen sources

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59765 Medication diabetes other not insulin status

Status related to the use of other medications for diabetes other than insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60083 Imaging brain abnormal enhancement anatomic site

Anatomic site of abnormal enhancement found in brain imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60029 Carbon dioxide submaximal absolute trial end measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59886 Vestibular head impulse test covert saccades count

Count of covert saccades encountered during vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
Displaying 301 - 325 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.