CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19558 Biomarker leukocytes assessment type

Type of biomarker(s) assessed from leukocytes samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20206 Mitochondrial disease stool blood indicator

Indicator of whether the participant/subject has blood in their stools

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20040 Mitochondrial disease eat reason text

The free text field to specify why participant/subject eats that way

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19695 Imaging development malformation cerebellum type

The type of malformations in development in the cerebellum (structure that is located at the back of the brain, underlying the occipital and temporal lobes of the cerebral cortex).

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20166 Mitochondrial disease abdominal pain wake indicator

Indicator of whether participant's/subject's abdominal pain wakes participant/subject from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20295 Hospital admission past year indicator

The indicator of whether the participant/subject was admitted to hospital in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19568 Biomarker myotube assessment type

Type of biomarker(s) assessed nfrom myotubes

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19998 Imaging white matter tract finding type

The finding related to imaging of the white matter tracts

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20174 Mitochondrial disease prior abdominal pain detail text

The free text field to specify additonal details about participant's/subject's past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20303 Hospital admission hyperglycemia past year total day count

The total duration, in days, of all of the participant's/subject's admissions to hospital for hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20134 Mitochondrial disease prior burp consistent day to day indicator

Indicator of whether past burping was consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20262 Hypoglycemia severe loss consciousness seizure past year indicator

The indicator of whether the participant/subject has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20182 Mitochondrial disease prior abdominal pain disrupt activity indicator

Indicator of whether participant's/subject's prior abdominal pain disrupted activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20020 Imaging phosphorus magnetic resonance spectroscopy leg laterality type

The type as related to leg laterality in phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20314 Imaging two dimensional speckle tracking echocardiography global strain chamber view type

The type of chamber view for global strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20142 Mitochondrial disease swallow problem frequency

The frequency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20271 Insulin bolus total daily unit count

The daily total of bolus or short acting insulin used by the participant/subject, in units

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

The participant/subject's head circumference percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20190 Mitochondrial disease bloat abdominal distension time type

The type, as time of day, at which the abdominal bloating/distension is worse for the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20028 Imaging phosphorus magnetic resonance spectroscopy exercise second duration

The duration in seconds of exercise bout completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20150 Mitochondrial disease remove food pill esophagus indicator

Indicator of whether participant/subject has food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant/subject used the emergency room for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19549 Biomarker Sample Assessment Type

Type of sample obtained from specimen to assess the biomarker

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.