CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 251 - 275 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3133-C59119	C59119	Genetic study data genotype category type	Type of genotype category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60074	C60074	Imaging diffusion-weighted imaging white matter abnormality anatomic site	Anatomic site of the of the white matter abnormality on diffusion-weighted imaging DWI	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60020	C60020	Respiration rate trial other timepoint measurement	Measurement, in breaths per minute (br/min), of the respiratory rate at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59877	C59877	Maximum sway excursion forward position percent value	Value of the percent of maximum sway excursion in a forward position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59739	C59739	Bone fracture anatomic site other text	Free-text field to specify other anatomic site of bone fractures	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59980	C59980	Blood pressure diastolic submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of diastolic blood pressure (BP) during the Submaximal Absolute Trial to diastolic BP at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60085	C60085	Imaging preload contrast agent previous injection dose value	Value of the dosage of the preload contrast agent previously injection	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59837	C59837	Right eye vision status	Status of the participant's vision using the right eye	Supplemental	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60247	C60247	Biomarker genetic assessment type other text	The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59167	C59167	Genotype platform description text	The free-text field describing the genotype platform	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60028	C60028	Oxygen uptake unit mass submaximal absolute trial end measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59885	C59885	Vestibular head impulse test type	Type of vestibular head impulse testing performed	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60143	C60143	Imaging brain computed tomography perform multiple status	Status related to whether multiple brain computed tomography (CT) imaging sessions have been performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56429	C56429	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score	The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3088-C60092	C60092	Imaging arterial spin labeling scheme type other text	The free-text field related to 'Imaging arterial spin labeling scheme type', specifying other text. Type of Arterial spin labeling scheme used in imaging	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59950	C59950	Oxygen uptake heart rate oxygen uptake peak predict ratio value	Value of the predicted ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), for peak VO2 attainment	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60195	C60195	Imaging study analysis type	Type of imaging study analysis performed	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59808	C59808	Audiometry masking status	Status of masking used in audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60104	C60104	Dual X-ray absorptiometry whole body less head bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the whole body not including the head	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59910	C59910	Respiration ventilatory anaerobic threshold rate	Rate of respiration (RR), in breaths per minute, when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60305	C60305	Mitochondrial disease cough eat indicator	Indicator of whether the participant coughs while eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20003	C20003	Hypoglycemia diagnosis indicator	The indicator related to having hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56438	C56438	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score	The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.