CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 903

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20229	C20229	Mitochondrial disease time GI symptom occur prior diagnosis text	The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19581	C19581	BMI Percentile Value	The participant's/subject's BMI percentile for children over 2 years	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20064	C20064	Mitochondrial disease vomit blood clot indicator	Indicator of whether participant's/subject's vomit has blood clots	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20191	C20191	Mitochondrial disease abdominal distension cause air stool reason	The reason the participant/subject thinks the belly is distended	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20151	C20151	Mitochondrial disease remove food pill esophagus count	The number of times participant/subject has had food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20280	C20280	Emergency room use hyperglycemia past year count	The count of the times the participant/subject used the emergency room for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19618	C19618	Height standard infant use type	Indicate whether WHO or CDC growth charts were used in height Z-score calculation	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20199	C20199	Mitochondrial disease prior bloat abdominal distension text	The free text field to specify additional details about the participant's/subject's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20033	C20033	Mitochondrial disease DNA mutation text	The free text field to specify the mitochondrial disease mitochondrial DNA mutation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20159	C20159	Mitochondrial disease abdominal frequency pain type	Select how often a participant/subject has abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20288	C20288	Non-diabetes related 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19631	C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20207	C20207	Mitochondrial disease stool blood color category	The category of color of blood in participant's/subject's stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20041	C20041	Mitochondrial disease liquid diet text	The free text field to specify the type of liquid diet used by participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20167	C20167	Mitochondrial disease abdominal pain improve text	The free text field to specify about what specifically makes the participant's/subject's abdominal pain better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20296	C20296	Hospital admission past year count	The count of times the participant/subject was admitted to hospital in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19553	C19553	Blood specimen pyruvate measurement status	The status as related to pyruvate level measured from the specimen's blood serum/plasma sample	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20175	C20175	Mitochondrial disease prior abdominal pain anatomic site	Select where participant's/subject's past abdominal pain was located	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20304	C20304	Hospital admission other diabetes related past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1869-C19690	C19690	Imaging white matter anatomic site	The anatomic site in the white matter cerebrum imaging	Supplemental	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20135	C20135	Mitochondrial disease prior burp reflux abdominal distention accompany type	The type of reflux or abdominal distention that accompanied prior burping episodes for the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20263	C20263	Diabetic ketoacidosis emergency post diagnosis diabetes count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the time since their diagnosis of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19561	C19561	Biomarker platelet assessment type	Type of biomarker(s) assessed from platelets (high OXPHOS) samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20183	C20183	Mitochondrial disease prior abdominal pain wake indicator	Indicator of whether participant's/subject's prior abdominal pain woke self/child from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1928-C20021	C20021	Imaging phosphorus magnetic resonance spectroscopy right leg not assessment reason	The free-text field for reason as related to not assessing right leg in phosphorus magnetic resonance spectroscopy (31PMRS)	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31PMRS)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.