CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 26 - 50 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59848	C59848	Positional test head right status	Status of the participant's eye movement in a head right facing position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59701	C59701	Pregnancy other outcome comment text	The free-text field describing the other comments and outcomes of a pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59775	C59775	Hypoglycemia diagnosis reason	Reason for hypoglycemia diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F3133-C60256	C60256	Genetic test result participant inform source type other text	The free-text field related to ' Genetic test result participant inform source type', specifying other text. Type of source that informed the participant of the genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54261	C54261	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score	Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3131-C60173	C60173	Imaging voxel diffusion reduce area indicator	Indicator of whether the voxel is over an area with reduced (restricted) diffusion	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60039	C60039	Work trial recovery start measurement	Measurement of work, in watts, generated at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60154	C60154	Imaging white matter hypodensity status	Status of white matter hypodensity found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C59692	C59692	Lab bone marker turnover test name	Name representing the bone turnover marker test that was performed	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59999	C59999	Oxygen uptake trial start measurement	Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59856	C59856	Caloric irrigation asymmetry percent value	Value of the percent of asymmetry associated with caloric irrigation	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59718	C59718	Medication steroid IV current indicator	Indicator of whether the participant is taking any steroids by IV	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52354	C52354	12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score	Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54269	C54269	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus visuospatial constructional difference score	Difference score calculated as a subtraction of Visuospatial/Constructional index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F1607-C21846	C21846	Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement	Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60162	C60162	Imaging cortical malformation frontoparietal anatomic site specify text	Free-text field to specify location of the anatomic site where cortical malformations appear in the frontoparietal region of the brain	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60007	C60007	Blood oxygen saturation trial start measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60277	C60277	Mitochondrial disease stop diet reason text	The free-text field to specify why the participant stopped their dietary restriction	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59864	C59864	Ocular vestibular-evoked myogenic potential N1 latency measurement	Measurement of the first negative peak (N1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59726	C59726	Medication bisphosphonate current indicator	Indicator of whether the participant is currently taking any bisphosphonates (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59967	C59967	Carbon dioxide end tidal partial pressure oxygen uptake peak measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54277	C54277	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score	Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3126-C59787	C59787	Otoscopy tympanic membrane abnormal type other text	The free-text field related to 'tympanic membrane abnormal type', specifying other text. Type of abnormal otoscopy finding for the tympanic membrane	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.