CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60134 Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59940 Respiratory exchange ratio submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) during the Submaximal Absolute Trial to the RER at the attainment of peak VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59798 Acoustic reflex stimulus tone frequency type

Type of frequency of the stimulus tone used in acoustic reflex testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59900 Work oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured work (in watts) being generated to the predicted work (in watts)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C21878 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score

Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60344 Wearable exercise technology indicator

Indicator of whether the participant uses wearable exercise technology

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59756 Insulin inject difficult type

Type of difficulty injecting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59730 Medication romusuzumab indicator

Indicator of whether the participant is or has ever taken romusuzumab (Evenity)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C60142 Dual X-ray absorptiometry R3 lateral distal femur areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59948 Oxygen uptake heart rate ventilatory anaerobic threshold ratio value

Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60193 Imaging spine multiple timepoint magnetic resonance imaging perform count type

Type of count for the number of multiple timepoint spine magnetic resonance imaging (MRI) sessions performed on the participant

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59806 Audiometry threshold pure tone air conduction stimulus frequency type

Type of frequency of the stimulus presented for pure tone audiometric threshold air conduction testing

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60102 Dual X-ray absorptiometry analysis perform date

Date the dual X-ray absorptiometry (DXA) analysis was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C21898 Brief Test of Adult Cognition by Telephone (BTACT) - Total repitition count

Total Number of repetitions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60086 Imaging post processing analysis type

Type of post process analysis method used in imaging

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59764 Medication diabetes SGLT2 inhibitor status

Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59738 Bone fracture anatomic site

The anatomic location of fractures experienced by the participant

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59765 Medication diabetes other not insulin status

Status related to the use of other medications for diabetes other than insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59956 Carbon dioxide ventilatory equivalent oxygen uptake peak predict value

Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60201 Imaging spinal cord atrophy indicator

Indicator of whether spinal cord atrophy is found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59814 Audiometry speech awareness threshold measurement

Measurement of the participant's speech awareness threshold obtained by speech audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60110 Dual X-ray absorptiometry lumbar spine areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
Displaying 26 - 50 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.