CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59798 Acoustic reflex stimulus tone frequency type

Type of frequency of the stimulus tone used in acoustic reflex testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60335 Mitochondrial disease pancreas imaging study type

Type of imaging study of the pancreas the participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59900 Work oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured work (in watts) being generated to the predicted work (in watts)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59764 Medication diabetes SGLT2 inhibitor status

Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60344 Wearable exercise technology indicator

Indicator of whether the participant uses wearable exercise technology

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C54250 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60189 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine recovery duration

Duration, in seconds, of phosphocreatine recovery in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C60295 Mitochondrial disease swallow pain occur liquid solid type

Type of bolus consistency with which the participant has pain when swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56427 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval lower bound value

The lower bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60090 Parameter map calculation other text

The free-text field related to 'Parameter map calculation type', specifying other text. Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60142 Dual X-ray absorptiometry R3 lateral distal femur areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59948 Oxygen uptake heart rate ventilatory anaerobic threshold ratio value

Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60193 Imaging spine multiple timepoint magnetic resonance imaging perform count type

Type of count for the number of multiple timepoint spine magnetic resonance imaging (MRI) sessions performed on the participant

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59806 Audiometry threshold pure tone air conduction stimulus frequency type

Type of frequency of the stimulus presented for pure tone audiometric threshold air conduction testing

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60102 Dual X-ray absorptiometry analysis perform date

Date the dual X-ray absorptiometry (DXA) analysis was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60303 Mitochondrial disease choke solid indicator

Indicator of whether the participant chokes with solids

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56436 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60098 Imaging crusher gradient use indicator

Indicator of whether a crusher gradient was used during imaging acquisition

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59956 Carbon dioxide ventilatory equivalent oxygen uptake peak predict value

Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60201 Imaging spinal cord atrophy indicator

Indicator of whether spinal cord atrophy is found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59814 Audiometry speech awareness threshold measurement

Measurement of the participant's speech awareness threshold obtained by speech audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60110 Dual X-ray absorptiometry lumbar spine areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60258 Organ donation register indicator

Indicator of whether the participant has registered for organ donation

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.