CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1649
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20204 Mitochondrial disease bowel movement problem onset age category

The category of the participant/subject's age at onset of bowel movement problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20038 Mitochondrial disease eat type

Select the type of ways that participant/subject eats

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19693 Imaging brainstem finding type

The finding related to imaging of the brainstem.

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20164 Mitochondrial disease abdominal pain trigger detail text

The free text field to specify additional details about participant's/subject's abdominal pain triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50429 Child and Adolescent Scale of Environment (CASE) - School work question type

The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE)

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C51719 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 8:1 observation text

Text describing the observations made on the subject's sketch for the age norm of 8 years and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C53025 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo D prime percentage value

Value related to the D prime percentile of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
C51679 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 1:4 spontaneous scribble observation text

Text describing the observations made on the subject's spontaneous scribble sketch for the age norm of 1 year and 4 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20212 Mitochondrial disease bowel movement treatment efficacy text

The free text field to specifyabout participant's/subject's treatments helping or worsening bowel movement problem

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20047 Mitochondrial disease dietary other restriction text

The free text field to specify whether participant/subject have other dietary retrictions

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19703 Imaging cerebellum component type

Type of cerebellum component

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20172 Mitochondrial disease prior abdominal pain stop text

The free text field to specify what stopped participant's/subject's past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20301 Medical office visit past year indicator

The indicator of whether the participant/subject was seen by a health care provider at a medical office in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50437 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of transportation indicator

The indicator relating to there being an inadequate amount or lack of transportation for the child, as part of the Child Adolescent Scale of Environment (CASE)

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C51727 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 10:11 observation text

Text describing the observations made on the subject's sketch for the age norm of 10 years and 11 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C53095 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time repeat percent correct score

Score related to the repeat percent correct score of the simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C54612 Brief Test of Executive Function Second Edition (BRIEF 2) - Working memory total raw scale score

Total score of the raw scale for the working memory function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
C51687 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 2:9 imitate observation text

Text describing the observations made on the subject's imitated sketch for the age norm of 2 years and 9 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20220 Mitochondrial disease alternative medicine type

Select the alternative medical treatments tried by the participant/subject.

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19601 Genetic test tissue type

Type of tissue tested.

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20180 Mitochondrial disease prior abdominal pain trigger type

The type of trigger of the participant's/subject's prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20309 Dietician consult past year count

The count of times that the participant/subject consulted a dietician in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.