CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1840
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59951 Oxygen uptake heart rate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of (1) the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60196 Imaging interpretation spine segment anatomic site

Anatomic site of spine segments available for interpretation in imaging

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59809 Audiometry threshold pure tone bone conduction stimulus frequency type

Type of frequency of the stimulus presented for pure tone audiometric threshold bone conduction testing

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60105 Dual X-ray absorptiometry whole body less head areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the whole body not including the head

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60253 Diagnosis primary mitochondrial disease support sign type

Type of sign supportive of primary mitochondrial disease diagnosis

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59911 Respiration oxygen uptake peak measure rate

Rate of respiration (RR), in breaths per minute, measured at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60224 Biomarker source assessment type other text

The free-text field related to 'Biomarker source assessment type', specifying other text. Type of source obtained to assess the biomarker

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60312 Mitochondrial disease swallow study indicator

Indicator of whether the participant has undergone a swallowing study

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59707 Hypoglycemia history indicator

Indicator of whether the participant has a history of hypoglycemia

Supplemental-Highly Recommended Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50680 Examiner name

The name of the person performing the exam

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C59959 Oxygen ventilatory equivalent submaximal absolute trial value

Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60204 Imaging enhancement spine level text

Free-text field specifying the spine level(s) with enhancement found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59817 Audiometry speech hearing level measurement

Measurement of hearing level obtained by speech audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60113 Trabecular Bone Score performed indicator

Indicator of whether the Trabecular Bone Score was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60261 Family history relative global unique identifier number

Number representing the Global Unique ID (GUID) of the participant's family member

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59919 Oxygen uptake submaximal absolute trial unit mass measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60178 Imaging multivoxel spectroscopy indicator

Indicator of whether multivoxel spectroscopy imaging was done

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C59777 Otoscopy anatomic site

Anatomic site of the otoscopy

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60044 Heart trial recovery start rate

Heart rate, in beats per minute (BPM), at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60232 Biomarker blood serum plasma assessment type other text

The free-text field related to 'Biomarker blood serum plasma assessment type', specifying other text. Type of biomarker(s) assessed from blood serum/plasma samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60320 Mitochondrial disease bowel movements current medication type other text

The free-text field related to 'Mitochondrial disease bowel movements current medication type', specifying other text. Type of other medications that the participant is currently taking to help with bowel movements

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59749 Family history insulin current use indicator

Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54619 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result T score

T score of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C56412 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning T score

The T score converted from the raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C60212 Imaging bright spot lesion indicator

Indicator of whether bright spot lesions are present in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1840

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.