CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1649
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C51677 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 1:1 Imitate mark or scribble observation text

Text describing the observations made on the subject's imitated mark or scribble sketch for the age norm of 1 year and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20210 Mitochondrial disease defecation other treatment text

The free text field to specify about the participant's/subject's use of other treatment to defecate

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20044 Mitochondrial disease special diet other text

The free text field to specify the type of specialized diet if not listed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19699 Imaging myelination distribution text

The free-text field to specify the distribution of the abnormal myelination

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20170 Mitochondrial disease prior abdominal pain onset age category

The category of the participant/subject's age at onset of prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20299 Hospital admission other diabetes related past year count

The count of the times the participant/subject was admitted to hospital for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50435 Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistance people home community indicator

The indicator relating to there being an inadequate amount or lack of assistance from people at home or in the child's community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C51725 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 10:2 observation text

Text describing the observations made on the subject's sketch for the age norm of 10 years and 2 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C53093 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time repeat reaction time percentage value

Value related to the repeat reaction time percentile of the simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C54610 Brief Test of Executive Function Second Edition (BRIEF 2) - Task completion total raw scale score

Total score of the raw scale for the task completion function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
C51685 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 2:6 imitate scribble observation text

Text describing the observations made on the subject's imitated sketch for the age norm of 2 years and 6 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication GI problem worsen text

The free text field to specify about what medicines made the participant's/subject's GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20053 Mitochondrial disease vomit frequency

The frequency with which the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19598 Genetic test tissue other text

The free-text field to specify the type of tisue tested for genetic test

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20178 Mitochondrial disease prior abdominal pain duration type

Select the length of time participant/subject had past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20307 Medical office visit not diabetes related past year count

The count of times that the participant/subject was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C50443 Child and Adolescent Scale of Environment (CASE) - Government agency policy problem indicator

The indicator relating to child having problems with government agencies and policies, as part of the Child Adolescent Scale of Environment (CASE)

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C20000 ECG QRS axis degree value

The degree value for QRS axis (the direction in which the mean QRS current flows) for the electrocardiogram (EKG) being recorded

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C51733 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 13:2 observation text

Text describing the observations made on the subject's sketch for the age norm of 13 years and 2 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C21846 Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement

Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C51693 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 3:0 copy circle observation text

Text describing the observations made on the subject's copied circle sketch for the age norm of 3 years, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20226 Mitochondrial disease surgery type detail text

The free text field to provide additional details about the type of surgery participant/subject had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20061 Mitochondrial disease vomit bright green yellow frequency

The frequency with which the participant's/subject's vomit is green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19609 Genetic test sequence range

Area of coverage for testing

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.