CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60271 Mitochondrial disease DNA deletion text

The free-text field to specify the mitochondrial disease mitochondrial DNA deletion

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59858 Cervical vestibular-evoked myogenic potential P1 latency measurement

Measurement of the first positive peak (P1) latency obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59720 Medication oral contraceptive current indicator

Indicator of whether the participant is currently taking oral contraceptives

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C60222 Imaging cauda equina root enhancement anatomic site

Anatomic site where cauda equina root enhancement is found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60353 Pulmonary function test result not applicable status

Status denoting that the results of the pulmonary function test are not applicable because the test was not performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C54285 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Delayed memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Delayed Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59696 Dietary supplement multivitamin or mineral name

Name of the multivitamin or multivitamin/mineral dietary supplement taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C60009 Blood pressure diastolic trial start measurement

Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60279 Mitochondrial disease vomit characteristic type

Type of characteristics the participant experiences when vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59866 Ocular vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59728 Medication teriparatide indicator

Indicator of whether the participant is or has ever taken teriparatide (Forteo)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59969 Oxygen end tidal partial pressure submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59827 Auditory brainstem response threshold measurement

Measurement of the hearing threshold obtained by auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60017 Heart trial other timepoint rate

Heart rate, in beats per minute (BPM), at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59874 Step acceleration test 60 degree per second time constant value

Value of the time constant for the 60 degree per second step acceleration tested

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59736 Vitamin D supplement indicator

Indicator of whether the participant is taking a vitamin D supplement

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59977 Blood pressure diastolic submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59835 Electrocochleography result status

Status of the result of the electrocochleography test performed

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60198 Imaging postcontrast magnetic resonance imaging T1WI sequence name

Name of the post contrast T1WI sequence used for Magnetic Resonance Imaging (MRI)

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C54261 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score

Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60025 Submaximal absolute trial end minute count

Count of elapsed minutes at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59882 Maximum sway excursion backward left position percent value

Value of the percent of maximum sway excursion in a backward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59985 Rate pressure product oxygen uptake peak predict value

Predicted value of the Rate Pressure Product at the attainment of peak oxygen uptake (VO2), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.