CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 903

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C19584	Genetic test performed year value	Value of the year the genetic test was performed	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C20174	Mitochondrial disease prior abdominal pain detail text	The free text field to specify additonal details about participant's/subject's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20134	Mitochondrial disease prior burp consistent day to day indicator	Indicator of whether past burping was consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20242	Diabetes clinical symptom presentation diagnosis type	Clinical symptoms participant/ subject showed at presentation when diagnosed with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19565	Blood Pressure measurement	Blood pressure measurement with systolic measurement over diastolic measurement	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19592	Genetic test mitochondrial DNA genome deletion duplication analysis tissue type	Type of tissue tested in the mtDNA genome deletion/duplication analysis test	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C20182	Mitochondrial disease prior abdominal pain disrupt activity indicator	Indicator of whether participant's/subject's prior abdominal pain disrupted activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C21858	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score	Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
C20142	Mitochondrial disease swallow problem frequency	The frequency with which the participant/subject has problems swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20252	Family history heart problem parent type	The type of the participant's/subject's parent with a history of heart attacks, heart failure or other heart problems	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19615	Genetic test name	The name of the genetic test used	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C20190	Mitochondrial disease bloat abdominal distension time type	The type, as time of day, at which the abdominal bloating/distension is worse for the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C21891	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type	Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
C20150	Mitochondrial disease remove food pill esophagus indicator	Indicator of whether participant/subject has food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20313	Imaging two dimensional speckle tracking echocardiography ventricle radial strain assessment result	The result of radial strain as related to ventricle in the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
C19721	Dietary supplement route administered anatomic site	Anatomic site for supplement entry being administered	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
C20198	Mitochondrial disease prior abdominal distension cause air stool reason	The reason the participant/subject thought the belly was distended in prior episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C18715	Imaging radio frequency coil other text	The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
C19585	Genetic test methodology type	Type of genetic methodology used	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
C20158	Mitochondrial disease abdominal pain anatomic site	Select where participant's/subject's abdominal pain is located	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20321	Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment result	The result in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
C19725	Laboratory procedure two hour glucose value	Subject/Participants amount of glucose in the blood 2 hours after a 75-gram glucose drink has been ingested	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
C20206	Mitochondrial disease stool blood indicator	Indicator of whether the participant/subject has blood in their stools	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1 - 25 of 903

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.