CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C52016 Child and Adolescent Scale of Participation (CASP) - Self-care activity scale

Scale to rate level of participation in self-care activities, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52017 Child and Adolescent Scale of Participation (CASP) - House movement scale

Scale to rate level of participation in moving about in and around the home, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51993 Child and Adolescent Scale of Participation (CASP) - Things interfere child participate text

Text describing the types of things that interfere child participate in the above-mentioned activities, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52004 Child and Adolescent Scale of Participation (CASP) -Change made to home community school for child text

Text describing changes made to home, community or school (or work) setting to help child participate, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51995 Child and Adolescent Scale of Participation (CASP) - Things help child participate text

Text describing the types of things that help child participate in the above-mentioned activities, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52007 Child and Adolescent Scale of Participation (CASP) - Transportation use scale

Scale to rate level of participation in using transportation to get around in the community, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51996 Child and Adolescent Scale of Participation (CASP) - Assistive device equipment used text

Text describing the assistive devices or equipment used to help child participate in the above-mentioned activities, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52008 Child and Adolescent Scale of Participation (CASP) - School movement scale

Scale to rate level of participation in moving around at school, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51985 Child and Adolescent Scale of Participation (CASP) - Neighborhood activity scale

Scale to rate level of participation in structured events and activities in the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51999 Child and Adolescent Scale of Participation (CASP) - Social play with family scale

Scale to rate level of participation in social, play or leisure activities with family members at home, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51987 Child and Adolescent Scale of Participation (CASP) - Work responsibility scale

Scale to rate level of participation in work activities and responsibilities, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52000 Child and Adolescent Scale of Participation (CASP) - Household activity scale

Scale to rate level of participation in household activities, compared to other children their age, as part of Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51990 Child and Adolescent Scale of Participation (CASP) - Communication with children and adult in neighborhood scale

Scale to rate level of participation in communicating with other children and adults in the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52001 Child and Adolescent Scale of Participation (CASP) - Communication children adults at school scale

Scale to rate level of participation in communicating with other children and adults at school, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51992 Child and Adolescent Scale of Participation (CASP) - Neighborhood social play scale

Scale to rate level of participation in social, play, or leisure activities with friends in the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52002 Child and Adolescent Scale of Participation (CASP) - Household responsibility scale

Scale to rate level of participation in family chores, responsibilities and decisions at home compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51977 Child and Adolescent Scale of Participation (CASP) - Communication with children and adults at home scale

Scale to rate level of participation in communicating with other children and adults at home, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C52003 Child and Adolescent Scale of Participation (CASP) -Educational material use scale

Scale to rate level of participation in using educational materials and equipment that are available to other children or that have been modified, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51980 Child and Adolescent Scale of Participation (CASP) - Shop manage money scale

Scale to rate level of participation in shopping and managing money, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51994 Child and Adolescent Scale of Participation (CASP) - School social play scale

Scale to rate level of participation in social, play and recreational activities with other children at school, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51981 Child and Adolescent Scale of Participation (CASP) - Academic activity scale

Scale to rate level of participation in educational (academic) activities with other children in his or her classroom at school, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51984 Child and Adolescent Scale of Participation (CASP) - Manage daily schedule scale

Scale to rate level of participation in managing daily schedule, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51973 Child and Adolescent Scale of Participation (CASP) - Neighborhood movement scale

Scale to rate level of participation in moving around the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation - Community Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C51799 Adaptive Behavior Assessment System III (ABAS III) - Community Use Total Score

Total Score related to Community Use ABAS III

 Supplemental Adaptive Behavior Assessment Scale (ABAS-II) True Mitochondrial Disease Mitochondrial Disease
C51798 Adaptive Behavior Assessment System III (ABAS III) - Walk ride bike alone scale

Scale related to the adult walking or riding a bike alone to locations within a 1-mile or 5-block radius of home or work, as part of the Adaptive Behavior Assessment System III (ABAS III)

 Supplemental Adaptive Behavior Assessment Scale (ABAS-II) True Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.