CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20160 Mitochondrial disease abdominal pain frequency other text

The free text field to specify frequency of participant's/subject's other abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20208 Mitochondrial disease stool blood amount result

The result of blood in the stool, as an amount

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20042 Mitochondrial disease restrict diet indicator

Indicator of whether participant/subject are on a restricted diet

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20168 Mitochondrial disease abdominal pain worsen text

The free text field to specify about what specifically makes the participant's/subject's abdominal pain worse

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20128 Mitochondrial disease burp occur specific drink food indicator

Indicator of whether participant's/subject's burping occurs with specific drinks or food

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20176 Mitochondrial disease prior abdominal pain frequency

The frequency with which the participant/subject had prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20098 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20223 Mitochondrial disease alternative medicine treatment worsen GI problem text

The free text field to specify about what alternative medicine treatments made the participant's/subject's GI problems worse

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20058 Mitochondrial disease vomit episode trigger text

The free text field to specify the participant's/subject's vomiting episode triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20106 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20231 Mitochondrial disease GI symptom result diagnosis text

The free text field to provide the GI symptoms that lead to a Mitochondrial disease diagnosis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20066 Mitochondrial disease vomit prior abdominal pain indicator

Indicator of whether participant/subject experiences abdominal pain before vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20114 Mitochondrial disease oral regurgitation occurrence timing type

The type of timing of the participant/subject's episodes of oral regurgitation with respect to meals

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20239 Mitochondrial disease other comment text

The free text field to provide additional information

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease vomit time period frequency other text

The free text field to specify how often the participant/subject vomited in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20122 Mitochondrial disease prior oral regurgitation occurrence timing type

The type of timing of the participant/subject's prior episodes of oral regurgitation with respect to meals

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20082 Mitochondiral disease prior vomit blood indicator

Indicator of whether participant/subject had ever vomited blood

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20090 Mitochondrial disease vomit diagnosis cyclic indicator

Indicator of whether the participant/subject has a cyclic vomiting diagnosis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20215 Mitochondrial disease current medication type

Select other medicines that participant/subject are currently taking

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20050 Mitochondrial disease current vomit episode trigger present symptom onset type

The type triggers participant/subject may have had when symptoms began

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20177 Mitochondrial disease prior abdominal pain frequency other text

The free text field to specify past frequency of participant's/subject's other abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20137 Mitchondrial disease prior burp specific food drink cause text

This free text field to specify which specific foods or drinks caused participant's/subject's past burping

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20185 Mitochondrial disease prior abdominal pain worsen text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain worse

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20145 Mitochondrial disease swallow pain frequency

The frequency with which the participant/subject has pain with swallowing

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20193 Mitochondrial disease bloat abdominal distension text

The free text field to specify additional details about the participant's/subject's abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.