CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20217	C20217	Mitochondrial disease medication gastrointestinal problem prior help text	The free-text field to specify about which medications helped with the participant's past GI problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20216	C20216	Mitochondrial disease current medication type other text	The free-text field related to 'Mitochondrial disease current medication type', specifying other text. Type of other medications that the participant is currently taking	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20214	C20214	Mitochondrial disease poor appetite growth affect text	The free-text field to specify affects of poor appetite on participant's growth	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20215	C20215	Mitochondrial disease current medication type	Type of other medicines that participant is currently taking	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20212	C20212	Mitochondrial disease bowel movement treatment efficacy text	The free-text field to specify about participant's treatments helping or worsening bowel movement problem	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20213	C20213	Mitochondrial disease bowel movement problem detail text	The free-text field to specify additional details about the participant's bowel movement problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20211	C20211	Mitochondrial disease prior bowel movement other treatment text	The free-text field to specify if the participant used other treatments for to help with bowel movements in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60320	C60320	Mitochondrial disease bowel movements current medication type other text	The free-text field related to 'Mitochondrial disease bowel movements current medication type', specifying other text. Type of other medications that the participant is currently taking to help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20209	C20209	Mitochondrial disease bowel movement treat medicine indicator	Indicator of whether the participant uses medicine to help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20208	C20208	Mitochondrial disease stool blood amount type	Type of amount of blood in the stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20207	C20207	Mitochondrial disease stool blood color category	Category of color of blood in the participant's stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20206	C20206	Mitochondrial disease stool blood indicator	Indicator of whether the participant has blood in their stools	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20205	C20205	Mitochondrial disease bowel movement strain pass indicator	Indicator of whether the participant has to strain to pass a bowel movement	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20203	C20203	Mitochondrial disease toileting use type	Type of toileting used by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20204	C20204	Mitochondrial disease bowel movement problem onset age category	Category of the participant's age at the onset of bowel movement problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20202	C20202	Mitochondrial disease bowel movement consistency result type	Type of the resulting consistency of the participant's bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20200	C20200	Mitochondrial disease bowel movement frequency type	Type of frequency with which the participant has bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20201	C20201	Mitochondrial disease bowel movement frequency type other text	The free-text field related to 'Mitochondrial disease bowel movement frequency type', specifying other text. Type of frequency with which the participant has bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20199	C20199	Mitochondrial disease prior bloat abdominal distension detail text	The free-text field to specify additional details about the participant's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20197	C20197	Mitochondrial disease prior bloat abdominal distension worse time type	Type, as time of day, at which prior abdominal bloating/distension was worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20198	C20198	Mitochondrial disease prior abdominal distension cause reason type	Type of reason for past abdominal distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20196	C20196	Mitochondrial disease prior bloat abdominal distension stop text	The free-text field to specify what stopped participant's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20194	C20194	Mitochondrial disease prior bloat abdominal distension onset age category	Category of the participant's age at the onset of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20195	C20195	Mitochondrial disease prior bloat abdominal distension stop age category	Category of the participant's age at the end of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20193	C20193	Mitochondrial disease current bloat abdominal distension detail text	The free-text field to specify additional details about the participant's abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.