CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3087-C16193	C16193	Pregnancy outcome date/time	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16168	C16168	Pregnancy self or contribute sperm number	Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59700	C59700	Pregnancy self or contribute sperm status	Status related to whether the participant has ever been pregnant or contributed sperm to a pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12939	C12939	Cardiovascular Holter exam abnormality significance type	Type of significance of abnormal results of the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12938	C12938	Cardiovascular Holter exam global result status	Status of the overall results of the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12937	C12937	Cardiovascular Holter exam arrhythmia symptom description text	Free-text field describing symptoms documented during arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12936	C12936	Cardiovascular Holter exam symptomatic arrhythmia indicator	Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12935	C12935	Cardiovascular Holter exam ventricular contraction morphology type	Type of morphology of the ventricular contraction	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17957	C17957	Cardiovascular Holter exam premature ventricular contraction count	Count of premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12931	C12931	Cardiovascular Holter exam premature ventricular contraction percentage value	Value of the percent of premature ventricular contractions the participant experienced during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17956	C17956	Cardiovascular ventricular dysrhythmia episode duration	Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17955	C17955	Cardiovascular ventricular dysrhythmia episode total count	Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C18882	C18882	Cardiovascular Holter exam ventricular dysrhythmia type other text	The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type', specifying other text. Type of ventricular dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19721	C19721	Dietary supplement route type	Type of administration route for the dietary supplement	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19719	C19719	Dietary supplement dose	Dose of the dietary supplement the participant is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19718	C19718	Dietary supplement indication reason	Reason the participant is taking the dietary supplement	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19717	C19717	Dietary supplement brand formulation name	Name of the dietary supplement brand or formulation taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19716	C19716	Dietary supplement compounded formulation ingredient text	Free-text field to specify list of ingredients used to make a specially compounded formulation	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19715	C19715	Dietary supplement generic name	Generic name for the supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19714	C19714	Dietary supplement study use indicator	Indicator of whether the participant took dietary supplements before or during the study	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59699	C59699	Dietary supplement route type other text	The free-text field related to 'Dietary supplement route type', specifying other type. Type of administration route for the dietary supplement	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59698	C59698	Dietary supplement dose unit of measure	Unit of measure for the dose of the dietary supplement the participant is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59697	C59697	Dietary supplement individual name	Name of the individual dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59696	C59696	Dietary supplement multivitamin or mineral name	Name of the multivitamin or multivitamin/mineral dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1401 - 1425 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.