CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3120-C59737	C59737	Bone fracture count	Count of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59735	C59735	Calcium supplement indicator	Indicator of whether the participant is taking a calcium supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59736	C59736	Vitamin D supplement indicator	Indicator of whether the participant is taking a vitamin D supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59734	C59734	Lactose intolerant indicator	Indicator of whether that the participant is lactose intolerant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59733	C59733	Consume dairy or substitute indicator	Indicator of whether the participant consumes dairy or dairy substitute products	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59732	C59732	Primary nutrition intake source other text	Free-text field to specify other type of primacy source of nutritional intake	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59730	C59730	Medication romusuzumab indicator	Indicator of whether the participant is or has ever taken romusuzumab (Evenity)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59731	C59731	Primary nutrition intake source type	Type of the participant's primary source of nutritional intake	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59729	C59729	Medication denosumab indicator	Indicator of whether the participant is or has ever taken denosumab (Prolia)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59728	C59728	Medication teriparatide indicator	Indicator of whether the participant is or has ever taken teriparatide (Forteo)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59727	C59727	Medication bisphosphonate past indicator	Indicator of whether the participant has ever taken a bisphosphonate (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate) in the past	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59726	C59726	Medication bisphosphonate current indicator	Indicator of whether the participant is currently taking any bisphosphonates (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59725	C59725	Medication stop puberty current indicator	Indicator of whether the participant is currently taking any medications to stop puberty	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59723	C59723	Medication other progesterone current indicator	Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59722	C59722	Medication depo-provera current indicator	Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59721	C59721	Medication estrogen current indicator	Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59720	C59720	Medication oral contraceptive current indicator	Indicator of whether the participant is currently taking oral contraceptives	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59719	C59719	Medication seizure current indicator	Indicator of whether the participant is taking any seizure medications	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59717	C59717	Medication steroid inhaler current indicator	Indicator of whether the participant is taking any steroids by inhaler	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59718	C59718	Medication steroid IV current indicator	Indicator of whether the participant is taking any steroids by IV	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59716	C59716	Medication steroid mouth current indicator	Indicator of whether the participant is taking any oral steroids by mouth	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20017	C20017	Hormone-related syndrome other text	The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20018	C20018	Hormone-related syndrome diagnosis age value	The age value of participant related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20016	C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.