CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20249	C20249	Family history diabetes relative type	Relationship to the participant of the family member with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59748	C59748	Participant mother pregnancy diabetes status	Status of diabetes for participant's mother during pregnancy	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20250	C20250	Family history diabetes medical condition indicator	Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20245	C20245	Full term birth indicator	Indicator of whether the participant was born at full term	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20246	C20246	Birth premature week early count	The count of weeks early that the participant was born prematurely	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59747	C59747	Glycosylated hemoglobin measure method type	Type of method used to measure glycosylated hemoglobin (HbA1C)	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59745	C59745	BMI diabetes diagnosis category	Category of the participant's BMI (body mass index) at the time of diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59746	C59746	Glycosylated hemoglobin diabetes diagnosis value	Value of glycosylated hemoglobin (A1C) at diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59744	C59744	Genetic test diabetes result text	Free-text field related to the results of diabetes genetic testing	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59743	C59743	Genetic test diabetes indicator	Indicator related to whether the participant had genetic testing related to diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20244	C20244	Diabetes insulin receive diagnosis indicator	The indicator of whether the participant received insulin at the time the diabetes was diagnosed	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20243	C20243	Diabetes laboratory diagnosis type	Laboratory indications present at diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20242	C20242	Diabetes clinical symptom presentation diagnosis type	Clinical symptoms participant showed at presentation when diagnosed with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59742	C59742	Bone fracture confirmed medical record indicator	Indicator of whether the participant had their fracture confirmed in medical record	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20241	C20241	Diabetes diagnosis indicator	The indicator of whether the participant has been diagnosed with diabetes	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59741	C59741	Bone fracture age value	Value for participant's age at the time of fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59740	C59740	Bone fracture mechanism type	The type of mechanism that caused the participant's fracture(s)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59738	C59738	Bone fracture anatomic site	The anatomic location of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59739	C59739	Bone fracture anatomic site other text	Free-text field to specify other anatomic site of bone fractures	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.