CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20271	C20271	Insulin bolus total daily unit count	The daily total of bolus or short acting insulin used by the participant, in units	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59751	C59751	Insulin basal current use status	Status indicating whether the participant currently uses basal or long acting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20270	C20270	Insulin basal total daily unit count	The daily total of basal or long acting insulin used by the participant, in units	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20269	C20269	Insulin delivery method last use type	The insulin delivery method used most recently by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20268	C20268	Insulin current use indicator	The indicator of whether the participant currently uses insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20267	C20267	Blood glucose test daily frequency	The daily frequency with which the participant checks their blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59750	C59750	Blood glucose test method type	Type of method used to test blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20265	C20265	Hypoglycemia severe loss consciousness seizure past year count	The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20262	C20262	Hypoglycemia severe loss consciousness seizure past year indicator	The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20266	C20266	Hypoglycemia severe loss consciousness seizure post diabetes diagnosis count	The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the time since they were diagnosed with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20261	C20261	Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator	The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20260	C20260	Diabetic ketoacidosis emergency past year indicator	The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20264	C20264	Diabetic ketoacidosis emergency past year count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20263	C20263	Diabetic ketoacidosis emergency post diagnosis diabetes count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20258	C20258	Medication reduce blood sugar prior diagnosis type	The type of the medication to reduce blood sugar levels taken by the participant prior to diagnosis of the condition/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20259	C20259	Diabetic ketoacidosis emergency post diagnosis diabetes indicator	The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20257	C20257	Medication reduce blood sugar prior diagnosis diabetes indicator	The indicator of whether the participant had been on medication to reduce blood sugar levels prior to diagnosis of the diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20255	C20255	Family history hypertension parent type	The type of the participant's parent with a history of hypertension	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20254	C20254	Family history high cholesterol parent type	The type of the participant's parent with a history of high cholesterol	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20253	C20253	Family history stroke parent type	The type of the participant's parent with a history of stroke	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20251	C20251	Family history kidney disease severe parent type	The type of the participant's parent with a history of kidney disease that required dialysis or kidney transplant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20252	C20252	Family history heart problem parent type	The type of the participant's parent with a history of heart attacks, heart failure or other heart problems	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59749	C59749	Family history insulin current use indicator	Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C19670	C19670	Family history diagnosis age unknown status	Status related to whether the participant knows the age of the relative when diagnosed	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.