CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C20049	Mitochondrial disease problem start age category	The age category of the participant/subject when problems began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20097	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency	The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20184	Mitochondrial disease prior abdominal pain improve text	The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20144	Mitochondrial disease details swallow problem text	The free text field to specify additional details about participant's/subject's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20192	Mitochondrial disease swallow air indicator	Indicator of whether participant/subject are air swallowers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20152	Mitochondrial disease esophagus diagnosis ever type	The type of esophageal disorder with which the participant/subject has ever been diagnosed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20200	Mitochondrial disease bowel movement frequency type	Select the participant's/subject's bowel movement frequency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20160	Mitochondrial disease abdominal pain frequency other text	The free text field to specify frequency of participant's/subject's other abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20208	Mitochondrial disease stool blood amount result	The result of blood in the stool, as an amount	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20168	Mitochondrial disease abdominal pain worsen text	The free text field to specify about what specifically makes the participant's/subject's abdominal pain worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20128	Mitochondrial disease burp occur specific drink food indicator	Indicator of whether participant's/subject's burping occurs with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20176	Mitochondrial disease prior abdominal pain frequency	The frequency with which the participant/subject had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20136	Mitochondrial disease prior burp specific drink food indicator	Indicator of whether participant's/subject's past burping occurred with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20098	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20223	Mitochondrial disease alternative medicine treatment worsen GI problem text	The free text field to specify about what alternative medicine treatments made the participant's/subject's GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20058	Mitochondrial disease vomit episode trigger text	The free text field to specify the participant's/subject's vomiting episode triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20106	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20231	Mitochondrial disease GI symptom result diagnosis text	The free text field to provide the GI symptoms that lead to a Mitochondrial disease diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20066	Mitochondrial disease vomit prior abdominal pain indicator	Indicator of whether participant/subject experiences abdominal pain before vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20114	Mitochondrial disease oral regurgitation occurrence timing type	The type of timing of the participant/subject's episodes of oral regurgitation with respect to meals	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20239	Mitochondrial disease other comment text	The free text field to provide additional information	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20074	Mitochondrial disease vomit time period frequency other text	The free text field to specify how often the participant/subject vomited in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20122	Mitochondrial disease prior oral regurgitation occurrence timing type	The type of timing of the participant/subject's prior episodes of oral regurgitation with respect to meals	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20034	Mitochondrial disease person relationship category	The type of relationship of participant/subject to family member with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20082	Mitochondiral disease prior vomit blood indicator	Indicator of whether participant/subject had ever vomited blood	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 126 - 150 of 903

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.