CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60324 Mitochondrial disease pancreatitis episodes duration text

The free-text field to specify the duration of the participant's pancreatitis episodes occurred

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60323 Mitochondrial disease pancreatitis episodes occur text

The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60322 Mitochondrial disease pancreatitis episode type

Type of pancreatitis episodes experienced by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60321 Mitochondrial disease pancreatic diagnose indicator

Indicator of whether the participant has been diagnosed with pancreatic disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20238 Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text

The free-text field related to 'Mitochondrial disease Munchausen by proxy syndrome health care professional setting type', specifying other text. Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20236 Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator

Indicator of whether a health care professional has had a concern about Munchausen by proxy

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20237 Mitochondrial disease Munchausen by proxy syndrome health care professional setting type

Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20235 Mitochondrial disease concern Munchausen by proxy syndrome indicator

Indicator of whether there is concern about the participant experiencing Munchausen by proxy

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20233 Mitochondrial disease gastrointestinal problem not believe delay treatment indicator

Indicator of whether the participant delayed treatment of GI problem due to fear of not being believed about symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20234 Mitochondrial disease gastrointestinal symptom refer psychiatric professional indicator

Indicator of whether the participant has ever been referred to a psychiatric professional regarding GI symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20232 Mitochondrial disease significant gastrointestinal symptom prior diagnosis text

The free-text field to provide significant GI symptoms before mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease gastrointestinal physician visit count

Count of GI doctors seen by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20231 Mitochondrial disease gastrointestinal symptom result diagnosis text

The free-text field to provide the GI symptoms that lead to a mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time gastrointestinal symptom occur prior diagnosis text

The free-text field to provide how long participant had GI symptoms before being diagnosed with mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20227 Mitochondrial disease life effect grade

Graded scale representing the effect of the symptoms on the participant's life

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20228 Mitochondrial disease gastrointestinal clinical trial participate indicator

Indicator of whether the participant would participate in a clinical trial regarding gastrointestinal issues

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20226 Mitochondrial disease surgery type detail text

The free-text field to provide additional details about the type of surgery participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20225 Mitochondrial disease surgery type

Select the type of surgery participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20223 Mitochondrial disease alternative medicine treatment gastrointestinal problem worsen text

The free-text field to specify about which alternative medicine treatments made the participant's GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20224 Mitochondrial disease surgery ever indicator

Indicator of whether the participant has had surgery

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20222 Mitochondrial disease alternative medicine treatment gastrointestinal problem improve text

The free-text field to specify about which alternative medicine treatments made the participant's GI problems better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20220 Mitochondrial disease alternative medicine type

Type of alternative medicine tried by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20221 Mitochondrial disease alternative medicine type other text

The free text field related to 'Mitochondrial disease alternative medicine type' specifying other text. Type of alternative medications that the participant has tried

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication gastrointestinal problem prior worsen text

The free-text field to specify about which medications made the participant's past GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20219 Mitochondrial disease alternative medicine treat GI problem indicator

Indicator of whether the participant has tried to treat GI problems with alternative medicine

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.