CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60324	C60324	Mitochondrial disease pancreatitis episodes duration text	The free-text field to specify the duration of the participant's pancreatitis episodes occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60322	C60322	Mitochondrial disease pancreatitis episode type	Type of pancreatitis episodes experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60323	C60323	Mitochondrial disease pancreatitis episodes occur text	The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60321	C60321	Mitochondrial disease pancreatic diagnose indicator	Indicator of whether the participant has been diagnosed with pancreatic disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20238	C20238	Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text	The free-text field related to 'Mitochondrial disease Munchausen by proxy syndrome health care professional setting type', specifying other text. Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20236	C20236	Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator	Indicator of whether a health care professional has had a concern about Munchausen by proxy	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20237	C20237	Mitochondrial disease Munchausen by proxy syndrome health care professional setting type	Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20235	C20235	Mitochondrial disease concern Munchausen by proxy syndrome indicator	Indicator of whether there is concern about the participant experiencing Munchausen by proxy	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20234	C20234	Mitochondrial disease gastrointestinal symptom refer psychiatric professional indicator	Indicator of whether the participant has ever been referred to a psychiatric professional regarding GI symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20233	C20233	Mitochondrial disease gastrointestinal problem not believe delay treatment indicator	Indicator of whether the participant delayed treatment of GI problem due to fear of not being believed about symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20232	C20232	Mitochondrial disease significant gastrointestinal symptom prior diagnosis text	The free-text field to provide significant GI symptoms before mitochondrial disease diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20230	C20230	Mitochondrial disease gastrointestinal physician visit count	Count of GI doctors seen by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20231	C20231	Mitochondrial disease gastrointestinal symptom result diagnosis text	The free-text field to provide the GI symptoms that lead to a mitochondrial disease diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20229	C20229	Mitochondrial disease time gastrointestinal symptom occur prior diagnosis text	The free-text field to provide how long participant had GI symptoms before being diagnosed with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20227	C20227	Mitochondrial disease life effect grade	Graded scale representing the effect of the symptoms on the participant's life	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20228	C20228	Mitochondrial disease gastrointestinal clinical trial participate indicator	Indicator of whether the participant would participate in a clinical trial regarding gastrointestinal issues	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20226	C20226	Mitochondrial disease surgery type detail text	The free-text field to provide additional details about the type of surgery participant had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20225	C20225	Mitochondrial disease surgery type	Select the type of surgery participant had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20223	C20223	Mitochondrial disease alternative medicine treatment gastrointestinal problem worsen text	The free-text field to specify about which alternative medicine treatments made the participant's GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20224	C20224	Mitochondrial disease surgery ever indicator	Indicator of whether the participant has had surgery	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20222	C20222	Mitochondrial disease alternative medicine treatment gastrointestinal problem improve text	The free-text field to specify about which alternative medicine treatments made the participant's GI problems better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20220	C20220	Mitochondrial disease alternative medicine type	Type of alternative medicine tried by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20221	C20221	Mitochondrial disease alternative medicine type other text	The free text field related to 'Mitochondrial disease alternative medicine type' specifying other text. Type of alternative medications that the participant has tried	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20218	C20218	Mitochondrial disease medication gastrointestinal problem prior worsen text	The free-text field to specify about which medications made the participant's past GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20219	C20219	Mitochondrial disease alternative medicine treat GI problem indicator	Indicator of whether the participant has tried to treat GI problems with alternative medicine	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.