CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3125-C59776	C59776	Allergy text	Free-text field to specify the participant's allergies	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C19903	C19903	Familial inheritance status	Status of familial inheritance of participant	Core	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C52564	C52564	Data source family relation specify text	Free-text field specifying the relationship of the family member from which data on the participant was obtained	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Core	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C17681	C17681	Family history collection source	The source of collected family history data	Core	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59775	C59775	Hypoglycemia diagnosis reason	Reason for hypoglycemia diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59774	C59774	Hypoglycemia cause indicator	Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59773	C59773	Hypoglycemia feed change type	Type of change in feeding due to hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59771	C59771	Medication hypoglycemia type	Type of medication taken for hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59772	C59772	Hypoglycemia feed change indicator	Indicator of whether any changes in feeding due to hypoglycemia have been made	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59770	C59770	Medication hypoglycemia indicator	Indicator of whether the participant has taken any medication for hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20005	C20005	Hypoglycemia symptom diagnosis text	The free-text field related to 'Hypoglycemia diagnosis type', specifying the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59769	C59769	Dietician consult count unknown status	Status related to the count of times the participant consulted a dietician is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20308	C20308	Dietician consult past year indicator	The indicator of whether the participant consulted a dietician in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20309	C20309	Dietician consult past year count	The count of times that the participant consulted a dietician in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59768	C59768	Medical office visit not diabetes related past year count unknown status	Status related to count of times that the participant was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59767	C59767	Medical office visit diabetes past year count unknown status	Status related to count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20307	C20307	Medical office visit not diabetes related past year count	The count of times that the participant was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1226 - 1250 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.