CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19575 Length infant measurement

Length measurement taken for infants less than 24 months

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60342 Triceps skinfold thickness value

Value of the triceps skinfold (back side middle upper arm) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60343 Subscapular skinfold thickness value

Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C15900 Weight percentile value

Value of the participant's weight percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19631 Weight pediatric measurement

Measurement of weight for a pediatric participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20239 Mitochondrial disease other comment text

The free-text field to provide additional information

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60340 Mitochondrial disease pancreatic enzyme replacement therapy indicator

Indicator of whether the participant had pancreatic enzyme replacement therapy indicator

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60341 Mitochondrial disease chronic pain medication pancreatitis indicator

Indicator of whether the participant is taking chronic pain medication for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60339 Mitochondrial disease fecal elastase test result status

Status to the participant's fecal elastase test result status

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60338 Mitochondrial disease fecal elastase test indicator

Indicator of whether the participant had fecal elastase testing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60337 Mitochondrial disease genetic tests pancreas result text

The free-text field related to the participant's genetic test results

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60335 Mitochondrial disease pancreas imaging study type

Type of imaging study of the pancreas the participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60336 Mitochondrial disease genetic testing pancreas indicator

Indicator of whether the participant had genetic testing performed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60334 Mitochondrial disease pancreas imaging study indicator

Indicator of whether the participant had an imaging study of their pancreas

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60333 Mitochondrial disease pancreatitis hospitalize indicator

Indicator of whether the participant was hospitalized for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60331 Mitochondrial disease pancreas insufficiency indicator

Indicator of whether the participant had pancreatic insufficiency

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60332 Mitochondrial disease symptom prompt check pancreatitis text

The free-text field specifying what symptoms prompted the participant's medical team to check for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60330 Mitochondrial disease chronic pancreatitis indicator

Indicator of whether the participant had chronic pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60329 Mitochondrial disease recurrent acute pancreatitis indicator

Indicator of whether the participant had recurrent acute pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60328 Mitochondrial disease acute pancreatitis indicator

Indicator of whether the participant had acute pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60326 Mitochondrial disease last pancreatitis episode age value

Value for the participant's age at the last pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60327 Mitochondrial disease total pancreatitis episodes number

Total number of pancreatitis episodes the participant experienced

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60325 Mitochondrial disease first pancreatitis episode age value

Value for the participant's age at the first pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.