CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20120 Mitochondrial disease prior oral regurgitation frequency

The frequency with which participant/subject had oral regurgitation in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20080 Mitochondrial disease prior vomit bright green yellow indicator

Indicator of whether participant's/subject's past vomit was bright green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20088 Mitochondrial disease prior vomit trigger other text

The free text field to specify additional details about what triggered the participant's/subject's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20213 Mitochondrial disease bowel movement problem text

The free text field to specify additional details about the participant's/subject's bowel movement problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20048 Mitochondrial disease vomit current prior status

The status of whether the participant/subject's vomiting is current or past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20096 Mitochondrial disease GI symptom consistent day to day indicator

Indicator of whether symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20221 Mitochondrial disease alternative medicine treatment other text

The free text field to specify other alternative medicine used to treatment

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20056 Mitochondrial disease vomit time of day category

The time-of-day category of when the participant/subject usually vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20104 Mitochondrial disease prior GI symptom consistent day to day indicator

Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time GI symptom occur prior diagnosis text

The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease vomit blood clot indicator

Indicator of whether participant's/subject's vomit has blood clots

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20112 Mitochondrial disease oral regurgitation frequency

The frequency with which participant/subject has oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20237 Mitochondrial disease Munchausen by proxy syndrome health care professional setting type

Select the setting when confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease vomit symptom consistent indicator

Indicator of whether past symptoms were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20207 Mitochondrial disease stool blood color category

The category of color of blood in participant's/subject's stool

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20041 Mitochondrial disease liquid diet text

The free text field to specify the type of liquid diet used by participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20167 Mitochondrial disease abdominal pain improve text

The free text field to specify about what specifically makes the participant's/subject's abdominal pain better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20175 Mitochondrial disease prior abdominal pain anatomic site

Select where participant's/subject's past abdominal pain was located

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20135 Mitochondrial disease prior burp reflux abdominal distention accompany type

The type of reflux or abdominal distention that accompanied prior burping episodes for the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20183 Mitochondrial disease prior abdominal pain wake indicator

Indicator of whether participant's/subject's prior abdominal pain woke self/child from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20143 Mitochondrial disease difficulty swallow change over time indicator

Indicator of whether participant's/subject's difficulty swallowing changes over time

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20191 Mitochondrial disease abdominal distension cause air stool reason

The reason the participant/subject thinks the belly is distended

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20151 Mitochondrial disease remove food pill esophagus count

The number of times participant/subject has had food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20199 Mitochondrial disease prior bloat abdominal distension text

The free text field to specify additional details about the participant's/subject's past abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20033 Mitochondrial disease DNA mutation text

The free text field to specify the mitochondrial disease mitochondrial DNA mutation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.