CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60353 Pulmonary function test result not applicable status

Status denoting that the results of the pulmonary function test are not applicable because the test was not performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11098 Pulmonary function test date and time

Date (and time, if applicable and known) the pulmonary function test was performed

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C60351 Sleep stage 4 average duration

Duration of average time in sleep stage 4 during the recording period

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60350 Sleep total average duration

Duration of total average sleep during the recording period

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60349 Sedentary average daily duration

Duration of average time the participant was sedentary daily

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60348 Vigorous activity average duration

Duration of average time the participant spent in vigorous activity

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60347 Step average daily count

Count of the average number of steps taken by the participant daily

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60345 Wearable exercise technology type

Type of wearable exercise technology the participant uses

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60346 Wearable exercise technology recording duration

Duration in days of the wearable exercise technology recording

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60344 Wearable exercise technology indicator

Indicator of whether the participant uses wearable exercise technology

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C19624 Head circumference Z score

The number of standard deviations the measured head circumference of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

Value of the participant's head circumference percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19581 BMI Percentile Value

Value of the participant's BMI percentile for children over 2 years

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19634 Body mass index pediatric value

Value of the participant's body mass index, calculated from height and weight, age

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19619 Weight length Z Score

The number of standard deviations the measured weight/length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19579 Weight length infant measurement

Measurement of weight/Length for infants less than 24 months

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19580 Weight/Length percentile value

Value of the participant's weight/length percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19617 Height Z score

The number of standard deviations the measured height of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C15901 Height percentile value

Value of the participant's height percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19633 Height pediatric unit of measure

Unit of measure for the height numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19572 Height pediatric measurement

Measurement of pediatric participant's height

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19577 Length infant unit of measure

Unit of measure for the length numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19608 Length percentile value

Value of the participant's length percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.