CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19621 BMI Z score

The number of standard deviations the calculated BMI of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59012 Imaging MRS sequence type

Type of magnetic resonance spectroscopy (MRS) sequence used

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C15458 Imaging spinal cord lesion anatomic site

Specifies the location of lesions in the spinal cord with respect to the different levels of vertebrae (cervical-C, thoracic-T, lumbar-L)

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60357 Imaging spinal cord lesion anatomic site type

Type of spinal cord anatomic site where lesions were found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C60356 Lab specimen urine collection type

Type of collection for the participant's urine specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60355 Lab urine specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of urine lab specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C10564 Lab blood specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of blood lab specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C19720 Dietary supplement dose frequency text

The free-text field describing the frequency of use of the dietary supplement

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C60354 Forced vital capacity percent predict normal value

Value as a percentage of the predicted normal value of Forced Vital Capacity (FVC) to grade the severity of the abnormality, where FVC is maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11109 Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator

Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11106 Pulmonary function maximal expiratory pressure (MEP) result value

Value in centimeters of water (cm H2O) of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11105 Pulmonary function maximal inspiratory pressure (MIP) result value

Value in centimeters of water (cm H2O) of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.