CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20089	C20089	Mitochondrial disease prior vomit other text	The free text field to specify additional details about participant's/subject's past vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20214	C20214	Mitochondrial disease poor appetite growth affect text	The free text field to specify affects of poor appetite on participant's/subject's growth	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20049	C20049	Mitochondrial disease problem start age category	The age category of the participant/subject when problems began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20097	C20097	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency	The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20222	C20222	Mitochondrial disease alternative medicine treatment improve GI problem text	The free text field to specify about what alternative medicines made the participant's/subject's GI problems better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20057	C20057	Mitochondrial disease vomit episode trigger indicator	Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20105	C20105	Mitochondrial disease prior GERD heartburn mid-line chest pain esophogeal burning frequency	The frequency of the participant/subject's prior GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20230	C20230	Mitochondrial disease GI physician visit count	The count of GI doctors seen by the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20065	C20065	Mitochondrial disease black stool indicator	Indicator of whether participant's/subject's stools are black	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20113	C20113	Mitochondrial disease oral regurgitation frequency other text	The free text field to specify frequency of participant's/subject's other oral regurgitation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20238	C20238	Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text	The free text field to provide the other setting when participant/subject confronted by a health care professional about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20073	C20073	Mitochondrial disease prior vomit frequency	The frequency of the participant/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20034	C20034	Mitochondrial disease person relationship category	The type of relationship of participant/subject to family member with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20160	C20160	Mitochondrial disease abdominal pain frequency other text	The free text field to specify frequency of participant's/subject's other abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20208	C20208	Mitochondrial disease stool blood amount result	The result of blood in the stool, as an amount	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20042	C20042	Mitochondrial disease restrict diet indicator	Indicator of whether participant/subject are on a restricted diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20168	C20168	Mitochondrial disease abdominal pain worsen text	The free text field to specify about what specifically makes the participant's/subject's abdominal pain worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20128	C20128	Mitochondrial disease burp occur specific drink food indicator	Indicator of whether participant's/subject's burping occurs with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20176	C20176	Mitochondrial disease prior abdominal pain frequency	The frequency with which the participant/subject had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20136	C20136	Mitochondrial disease prior burp specific drink food indicator	Indicator of whether participant's/subject's past burping occurred with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20184	C20184	Mitochondrial disease prior abdominal pain improve text	The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20144	C20144	Mitochondrial disease details swallow problem text	The free text field to specify additional details about participant's/subject's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20192	C20192	Mitochondrial disease swallow air indicator	Indicator of whether participant/subject are air swallowers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20152	C20152	Mitochondrial disease esophagus diagnosis ever type	The type of esophageal disorder with which the participant/subject has ever been diagnosed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20200	C20200	Mitochondrial disease bowel movement frequency type	Select the participant's/subject's bowel movement frequency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.