CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20089 Mitochondrial disease prior vomit other text

The free text field to specify additional details about participant's/subject's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20214 Mitochondrial disease poor appetite growth affect text

The free text field to specify affects of poor appetite on participant's/subject's growth

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20049 Mitochondrial disease problem start age category

The age category of the participant/subject when problems began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20097 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency

The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20222 Mitochondrial disease alternative medicine treatment improve GI problem text

The free text field to specify about what alternative medicines made the participant's/subject's GI problems better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20057 Mitochondrial disease vomit episode trigger indicator

Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20105 Mitochondrial disease prior GERD heartburn mid-line chest pain esophogeal burning frequency

The frequency of the participant/subject's prior GERD, heartburn, mid-line chest pain, esophageal burning

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease GI physician visit count

The count of GI doctors seen by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20065 Mitochondrial disease black stool indicator

Indicator of whether participant's/subject's stools are black

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20113 Mitochondrial disease oral regurgitation frequency other text

The free text field to specify frequency of participant's/subject's other oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20238 Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text

The free text field to provide the other setting when participant/subject confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20073 Mitochondrial disease prior vomit frequency

The frequency of the participant/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20034 Mitochondrial disease person relationship category

The type of relationship of participant/subject to family member with mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20160 Mitochondrial disease abdominal pain frequency other text

The free text field to specify frequency of participant's/subject's other abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20208 Mitochondrial disease stool blood amount result

The result of blood in the stool, as an amount

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20042 Mitochondrial disease restrict diet indicator

Indicator of whether participant/subject are on a restricted diet

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20168 Mitochondrial disease abdominal pain worsen text

The free text field to specify about what specifically makes the participant's/subject's abdominal pain worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20128 Mitochondrial disease burp occur specific drink food indicator

Indicator of whether participant's/subject's burping occurs with specific drinks or food

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20176 Mitochondrial disease prior abdominal pain frequency

The frequency with which the participant/subject had prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20136 Mitochondrial disease prior burp specific drink food indicator

Indicator of whether participant's/subject's past burping occurred with specific drinks or food

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20184 Mitochondrial disease prior abdominal pain improve text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20144 Mitochondrial disease details swallow problem text

The free text field to specify additional details about participant's/subject's swallowing problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20192 Mitochondrial disease swallow air indicator

Indicator of whether participant/subject are air swallowers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20152 Mitochondrial disease esophagus diagnosis ever type

The type of esophageal disorder with which the participant/subject has ever been diagnosed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20200 Mitochondrial disease bowel movement frequency type

Select the participant's/subject's bowel movement frequency

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.