CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 351 - 375 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20052	C20052	Mitochondrial disease current vomit symptom consistent indicator	Indicator of whether current vomiting symptoms are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20050	C20050	Mitochondrial disease current vomit episode trigger symptom onset type	Type of triggers the participant may have had when symptoms began for the current vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20051	C20051	Mitochondrial disease current vomit episode trigger symptom onset type other text	The free-text field related to 'Mitochondrial disease current vomit episode trigger symptom onset type ', specifying other text. Type of triggers the participant may have had when symptoms began for the current vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20049	C20049	Mitochondrial disease current vomit onset age category	Category of the participant's age at the onset of current vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20048	C20048	Mitochondrial disease vomit current prior status	Status of whether the participant's vomiting is current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60278	C60278	Mitochondrial disease prior special diet affect symptom text	The free-text field to specify whether the prior specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60277	C60277	Mitochondrial disease stop diet reason text	The free-text field to specify why the participant stopped their dietary restriction	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20047	C20047	Mitochondrial disease prior special diet type other text	The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60276	C60276	Mitochondrial disease prior special diet type	Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20329	C20329	Mitochondrial disease prior special diet indicator	Indicator of whether the participant has been on a restricted/specialized diet in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20046	C20046	Mitochondrial disease current special diet affect symptom text	The free-text field to specify whether the current specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20330	C20330	Mitochondrial disease special diet reason text	The free-text field to specify why the participant is on a specialized diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20043	C20043	Mitochondrial disease current special diet type	Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20044	C20044	Mitochondrial disease current special diet type other text	The free-text field related to 'Mitochondrial disease special diet type', specifying other text. Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20041	C20041	Mitochondrial disease liquid diet text	The free-text field to specify the type of liquid diet used by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20042	C20042	Mitochondrial disease current special diet indicator	Indicator of whether the participant is currently on a restricted/specialized diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60275	C60275	Mitochondrial disease infant formula recommendation type other text	The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60274	C60274	Mitochondrial disease infant formula recommendation type	Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60273	C60273	Mitochondrial disease infant formula choose reason text	The free-text field to specify the reason an infant formula was chosen	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20038	C20038	Mitochondrial disease eat type	Type of ways that participant eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20039	C20039	Mitochondrial disease infant formula text	The free-text field to specify the kind of infant formula used by participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20037	C20037	Mitochondrial disease problem type	Type of problems that participant has	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60272	C60272	Informant questionnaire text	The free-text field specifying the informant for the questionnaire	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20034	C20034	Mitochondrial disease person relationship category	Type of relationship of participant to family member with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60271	C60271	Mitochondrial disease DNA deletion text	The free-text field to specify the mitochondrial disease mitochondrial DNA deletion	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.