CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19670	Family history diagnosis age indicator	Indicator for whether the participant/subject knows the age of the relative when diagnosed	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20250	Diabetes family history medical condition indicator	Indicator of whether a close family member of the participant/subject has had a history of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20017	Hormone-related syndrome other text	The free-text field related to other specify of known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19599	Gene text	The free-text field to specify gene screened in the participant/subject for the disease or disorder	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20018	Hormone-related syndrome diagnosis age value	The age value of participant/subject related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C20242	Diabetes clinical symptom presentation diagnosis type	Clinical symptoms participant/ subject showed at presentation when diagnosed with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19571	Body mass index category	Categorization of the participant/subject's body mass index	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19583	Tanner stage genitalia scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20302	Hospital admission hypoglycemia past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20303	Hospital admission hyperglycemia past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20304	Hospital admission other diabetes related past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20305	Hospital admission not diabetes related past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons not related to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20284	Diabetes 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20285	Hypoglycemia 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20286	Hyperglycemia 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20287	Diabetes related other 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20288	Non-diabetes related 911 call past year count	The count of the times that the participant/subject called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20283	Diabetes 911 call past year indicator	The indicator of whether the participant/subject has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20308	Dietician consult past year indicator	The indicator of whether the participant/subject consulted a dietician in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20292	Urgent care clinic use hyperglycemia past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20300	Hospital admission not diabetes related past year count	The count of the times the participant/subject was admitted to hospital for reasons unrelated to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.