CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 903

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C20087	Mitochondrial disease prior vomit onset trigger type	The type of trigger present at symptom onset of the participant's/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20212	Mitochondrial disease bowel movement treatment efficacy text	The free text field to specifyabout participant's/subject's treatments helping or worsening bowel movement problem	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20047	Mitochondrial disease dietary other restriction text	The free text field to specify whether participant/subject have other dietary retrictions	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20095	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burning age category	The category of the participant/subject's age at GERD, heartburn, mid-line chest, pain esophageal burning onset	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20220	Mitochondrial disease alternative medicine type	Select the alternative medical treatments tried by the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20055	Mitochondrial disease vomit episode intensity type	The type of intensity of the participant/subject's episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20103	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop reason	The free text field to specify when participant's/subject's past GERD heartburn mid-line chest pain esophageal burning stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20228	Mitochondrial disease GI clinical trial participate indicator	Indicator of whether participant/subject would participate in a clinical trial	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20063	Mitochondrial disease vomit color blood category	The category of color of the blood present in participant's/subject's vomit	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20111	Mitochondrial disease oral regurgitation symptom consistent day to day indicator	Indicator of whether symptoms of oral regurgitation are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20331	Mitochondrial disease severe vomit symptom type	The type of symptom that was most severe with the patient/subject's vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20328	Mitochondrial disease bowel movements current medication type	Select medications that participant/subject are currently taking for help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C19623	Head circumference percentile value	The participant/subject's head circumference percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19579	Weight length infant measurement	Weight/Length measurement for infants less than 24 months	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20249	Family history diabetes relative type	Relationship to the participant/subject of the family member with diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19580	Weight/Length percentile value	The participant/subject's weight/length percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19670	Family history diagnosis age indicator	Indicator for whether the participant/subject knows the age of the relative when diagnosed	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20250	Diabetes family history medical condition indicator	Indicator of whether a close family member of the participant/subject has had a history of diabetes	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20017	Hormone-related syndrome other text	The free-text field related to other specify of known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19599	Gene text	The free-text field to specify gene screened in the participant/subject for the disease or disorder	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20018	Hormone-related syndrome diagnosis age value	The age value of participant/subject related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 251 - 275 of 903

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.