CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C57114 Rest time count

Count of the time (in minutes) taken at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C20036 Height paternal measurement

Measurement of participant's father's height

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20035 Height maternal measurement

Measurement of participant's mother's height

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C59012 Imaging MRS sequence type

Type of magnetic resonance spectroscopy (MRS) sequence used

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16178 Post-menopausal cause type

Type of cause or reason for the post-menopausal period in the participant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C19625 Head circumference standard infant use type

Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C12919 Cardiovascular Holter exam atrial dysrhythmia type

Type of atrial dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59141 Genetic study data sequencing category type

Type of sequencing category data expected for the genetics study

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C19618 Height standard infant use type

Indicator of whether WHO or CDC growth charts were used in height Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20328 Mitochondrial disease bowel movements current medication type

Type of medications that the participant is currently taking for help with bowel movements

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56033 Genetic test result source type

Type of source of the participant's genetic test results

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C16195 Biological sample in repository specimen type

Type of biological sample or specimen collected and stored in a repository

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C12506 Imaging eye abnormality type

The type of eye abnormalities

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20004 Hypoglycemia diagnosis type

The type related to having concern or diagnosis of hypoglycemia or low blood sugar

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10981 Birth control method type

The participant's method of birth control

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.