CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1057-C12469	C12469	Imaging magnetic resonance imaging session number	Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12911	C12911	Echocardiogram systolic pressure estimation type	Technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12481	C12481	Imaging cortex lissencephaly (LIS type 1) indicator	Indicator of whether cortex lissencephaly is found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12489	C12489	Imaging subcortical cysts site type	The anatomical site(s) of the subcortical cysts	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for subject/participant	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12497	C12497	Imaging cerebellum abnormality type	The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C10727	C10727	Echocardiogram LVIDd measurement	Left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12843	C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C10741	C10741	Echocardiogram degree of aortic regurgitation status	Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12851	C12851	Cardiac MRI left ventricle noncompaction position anatomic site	Anatomic site or position on the left ventrical of any non-compaction observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12926	C12926	Cardiovascular Holter exam premature atrial contraction percentage value	Percent of premature atrial contractions the participant/subject experienced during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12870	C12870	Echocardiogram pulmonic stenosis degree status	Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12938	C12938	Cardiovascular Holter exam global result status	The overall results of the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12889	C12889	Echocardiogram right ventricle fraction shorten measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episodes total number	Total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12897	C12897	Echocardiogram right ventricle end diastolic volume measurement	Imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12498	C12498	Imaging white matter T2 abnormal indicator	Indicator of whether the white matter appears normal or abnormal on T2 weighted images	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10589	C10589	Imaging shot count	The number of shots used in the imaging echo-planner acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12904	C12904	Echocardiogram left ventricular mass measurement	The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12474	C12474	Imaging field of view measurement description text	The general description of field of view (FOV) or anatomical positioning	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.