CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Mitochondrial Disease Mitochondrial Disease
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Mitochondrial Disease Mitochondrial Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental-Highly Recommended Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01706 Lab test result text

Result of the laboratory test

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10500 Symptom onset age value

Age when symptoms first experienced

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.