CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1726 - 1750 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20239	C20239	Mitochondrial disease other comment text	The free-text field to provide additional information	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19631	C19631	Weight pediatric measurement	Measurement of weight for a pediatric participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C15900	C15900	Weight percentile value	Value of the participant's weight percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60342	C60342	Triceps skinfold thickness value	Value of the triceps skinfold (back side middle upper arm) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60343	C60343	Subscapular skinfold thickness value	Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19575	C19575	Length infant measurement	Length measurement taken for infants less than 24 months	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19608	C19608	Length percentile value	Value of the participant's length percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19577	C19577	Length infant unit of measure	Unit of measure for the length numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19613	C19613	Length Z score	The number of standard deviations the measured length of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19572	C19572	Height pediatric measurement	Measurement of pediatric participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19633	C19633	Height pediatric unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19617	C19617	Height Z score	The number of standard deviations the measured height of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C15901	C15901	Height percentile value	Value of the participant's height percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19579	C19579	Weight length infant measurement	Measurement of weight/Length for infants less than 24 months	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19580	C19580	Weight/Length percentile value	Value of the participant's weight/length percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19619	C19619	Weight length Z Score	The number of standard deviations the measured weight/length of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19634	C19634	Body mass index pediatric value	Value of the participant's body mass index, calculated from height and weight, age	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19581	C19581	BMI Percentile Value	Value of the participant's BMI percentile for children over 2 years	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19623	C19623	Head circumference percentile value	Value of the participant's head circumference percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19624	C19624	Head circumference Z score	The number of standard deviations the measured head circumference of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60344	C60344	Wearable exercise technology indicator	Indicator of whether the participant uses wearable exercise technology	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60346	C60346	Wearable exercise technology recording duration	Duration in days of the wearable exercise technology recording	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1726 - 1750 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.