CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1701 - 1725 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20234	C20234	Mitochondrial disease gastrointestinal symptom refer psychiatric professional indicator	Indicator of whether the participant has ever been referred to a psychiatric professional regarding GI symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20235	C20235	Mitochondrial disease concern Munchausen by proxy syndrome indicator	Indicator of whether there is concern about the participant experiencing Munchausen by proxy	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20236	C20236	Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator	Indicator of whether a health care professional has had a concern about Munchausen by proxy	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20237	C20237	Mitochondrial disease Munchausen by proxy syndrome health care professional setting type	Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20238	C20238	Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text	The free-text field related to 'Mitochondrial disease Munchausen by proxy syndrome health care professional setting type', specifying other text. Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60321	C60321	Mitochondrial disease pancreatic diagnose indicator	Indicator of whether the participant has been diagnosed with pancreatic disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60322	C60322	Mitochondrial disease pancreatitis episode type	Type of pancreatitis episodes experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60323	C60323	Mitochondrial disease pancreatitis episodes occur text	The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60324	C60324	Mitochondrial disease pancreatitis episodes duration text	The free-text field to specify the duration of the participant's pancreatitis episodes occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60325	C60325	Mitochondrial disease first pancreatitis episode age value	Value for the participant's age at the first pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60326	C60326	Mitochondrial disease last pancreatitis episode age value	Value for the participant's age at the last pancreatitis episode	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60327	C60327	Mitochondrial disease total pancreatitis episodes number	Total number of pancreatitis episodes the participant experienced	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60328	C60328	Mitochondrial disease acute pancreatitis indicator	Indicator of whether the participant had acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60329	C60329	Mitochondrial disease recurrent acute pancreatitis indicator	Indicator of whether the participant had recurrent acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60330	C60330	Mitochondrial disease chronic pancreatitis indicator	Indicator of whether the participant had chronic pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60331	C60331	Mitochondrial disease pancreas insufficiency indicator	Indicator of whether the participant had pancreatic insufficiency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60332	C60332	Mitochondrial disease symptom prompt check pancreatitis text	The free-text field specifying what symptoms prompted the participant's medical team to check for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60333	C60333	Mitochondrial disease pancreatitis hospitalize indicator	Indicator of whether the participant was hospitalized for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60334	C60334	Mitochondrial disease pancreas imaging study indicator	Indicator of whether the participant had an imaging study of their pancreas	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60335	C60335	Mitochondrial disease pancreas imaging study type	Type of imaging study of the pancreas the participant had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60336	C60336	Mitochondrial disease genetic testing pancreas indicator	Indicator of whether the participant had genetic testing performed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60337	C60337	Mitochondrial disease genetic tests pancreas result text	The free-text field related to the participant's genetic test results	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60339	C60339	Mitochondrial disease fecal elastase test result status	Status to the participant's fecal elastase test result status	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1701 - 1725 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.