CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09363 Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator

Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09371 Hamilton Depression Rating Scale (HDRS) - middle night insomnia indicator

Score for the participant/subject's difficulty, if any, with middle-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09364 Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator

Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09372 Hamilton Depression Rating Scale (HDRS) - early morning insomnia indicator

Score for the participant/subject's difficulty, if any, with insomnia in the early morning hours, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C11099 Pulmonary function test type

Type of pulmonary function testing performed

 Supplemental-Highly Recommended Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C08023 Imaging abnormal finding text

Text description of the abnormal findings on the imaging study

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C17928 Cardiac MRI myocardial scar anatomic site

Anatomic site where myocardial scar was/was not detected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12933 Cardiovascular Holter exam ventricular contraction count type

Type of ventricular contraction for which the total number of occurrences is recorded

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C12505 Imaging eye abnormality indicator

Indicator of whether eye abnormalities are present

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C08023 Imaging abnormal finding text

Text description of the abnormal findings on the imaging study

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C54237 Echocardiogram pericardial effusion abnormal text

Free-text field to describe pericardial effusion or abnormality observed by echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.