CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C09375 Hamilton Depression Rating Scale (HDRS) - agitation indicator

Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Mitochondrial Disease Mitochondrial Disease
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C09367 Hamilton Depression Rating Scale (HDRS) - insight indicator

Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10874 Holter exam maximum heart rate

Maximum heart rate measured during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10876 Holter exam mean heart rate

Mean heart rate measured during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.