CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09367	C09367	Hamilton Depression Rating Scale (HDRS) - insight indicator	Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09375	C09375	Hamilton Depression Rating Scale (HDRS) - agitation indicator	Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09361	C09361	Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator	Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11109	C11109	Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator	Whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1829-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09368	C09368	Hamilton Depression Rating Scale (HDRS) - guilty mind indicator	Score for the presence, qualities, and strength of the participant/subject's guilty feelings, if any, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09376	C09376	Hamilton Depression Rating Scale (HDRS) - total score	Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09362	C09362	Hamilton Depression Rating Scale (HDRS) - general somatic symptoms indicator	Score for the intensity of the participant/subject's general somatic symptoms, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10569	C10569	Imaging perfusion method type	Type of method used for acquiring perfusion magnetic resonance imaging (PMRI) data	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11110	C11110	Pulmonary function sniff nasal inspiratory pressure (SNIP) result value	Value representing the Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, as a measure of global inspiratory muscle strength	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1829-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09369	C09369	Hamilton Depression Rating Scale (HDRS) - suicide indicator	Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10599	C10599	Parameter map calculation type	Type(s) of parameter maps calculated for the perfusion MRI scan being reported	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09363	C09363	Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator	Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11111	C11111	Pulmonary function sniff nasal inspiratory pressure (SNIP) peak pressure value	Value representing the peak Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, of three trials	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1829-C10974	C10974	Manual muscle testing muscle score	The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09370	C09370	Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator	Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09364	C09364	Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator	Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11112	C11112	Pulmonary function maximal voluntary ventilation (MVV) result value	Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1829-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C10980	C10980	Childbearing potential indicator	Indicator of whether the participant/subject is of childbearing potential	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09371	C09371	Hamilton Depression Rating Scale (HDRS) - middle night insomnia indicator	Score for the participant/subject's difficulty, if any, with middle-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10843	C10843	Imaging analysis software version number	The version number of the software used for quantitative analysis of the imaging study	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.