CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C52346 12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale

Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C52340 12-item Short Form Health Survey Version 2 (SF-12v2) - Less accomplished physical health scale

Scale for surveyee-reported less accomplishment as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09374 Hamilton Depression Rating Scale (HDRS) - retardation indicator

Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09367 Hamilton Depression Rating Scale (HDRS) - insight indicator

Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09375 Hamilton Depression Rating Scale (HDRS) - agitation indicator

Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Mitochondrial Disease Mitochondrial Disease
C52343 12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale

Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C09360 Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator

Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.