CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12469 Imaging magnetic resonance imaging session number

Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12481 Imaging cortex lissencephaly (LIS type 1) indicator

Indicator of whether cortex lissencephaly is found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12489 Imaging subcortical cysts site type

The anatomical site(s) of the subcortical cysts

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle as assessed by echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12865 Echocardiogram left atrial volume measurement

Volume of the left atrium measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12933 Cardiovascular Holter exam ventricular contraction count type

Type of ventricular contraction for which the total number of occurrences is recorded

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C12873 Echocardiogram tricuspid stenosis degree status

Assessment with echocardiography of whether there is stenosis of the tricuspid valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12844 Cardiac MRI ventricle end systolic volume index value

Value of the selected ventricle's end systolic volume measurement divided by the participant/subject's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12892 Echocardiogram left ventricle wall motion abnormal indicator

Presence or absence of wall motion abnormalities in left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18881 Cardiovascular Holter exam episode count other text

The free-text field related to 'Cardiovascular Holter exam episode count type' specifying other text. Type of event for which the total number of episodes are recording during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C10731 Echocardiogram right atrial enlargement status

Status of absence or presence of right atrial enlargement on the echocardiogram

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12917 Cardiovascular Holter predominant heart rhythm type

Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C12498 Imaging white matter T2 abnormal indicator

Indicator of whether the white matter appears normal or abnormal on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17961 Cardiovascular aortic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the aortic valve

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12506 Imaging eye abnormality type

The type of eye abnormalities

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C54235 Echocardiogram right ventricle PWTd measurement

Right ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C12474 Imaging field of view measurement description text

The general description of field of view (FOV) or anatomical positioning

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18813 Imaging lesion found other text

The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found within the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.