CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C16164 Hormonal therapy start date

The date and time (if applicable and known) the participant/subject started hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16193 Pregnancy outcome date

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant/subject or the participant/subject's partner

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16165 Hormonal therapy stop date

The date and time (if applicable and known) the participant/subject stopped hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16174 Menopause indicator

Indicates whether participant/subject is currently menopausal.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16167 Given birth or fathered a child indicator

Indicates whether participant/subject has ever given birth or fathered a child

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or spouse number

Number of each pregnancy of participant/subject or participant/subject's partner.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16159 Family history relative age at onset value

Age the participant's/subject's relative experienced the onset of the disease or disorder

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant/subject is post-menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16160 Tobacco smoked 100 cigarettes indicator

Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life.

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16170 Menstrual period occurrence indicator

Indicates whether participant/subject has ever had a menstrual period.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16178 Post-menopausal cause type

Cause or reason for the post-menopausal period in the female participant/subject

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16171 Menstrual period first occurrence age value

Youngest age the female participant/subject had a menstrual period, otherwise known as the age of menarche.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16179 Post-menopausal surgery date

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant/subject

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16172 Pregnant current indicator

Whether the female participant/subject is currently pregnant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16180 Hormone-related syndrome indicator

Whether the participant/subject has known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C13214 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - short term memory scale

Compared with 10 years ago how is this person at remembering things that have happened recently

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C13222 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - learning new things scale

Compared with 10 years ago how is this person at learning new things in general

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C13215 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - recent conversation scale

Compared with 10 years ago how is this person at recalling conversations a few days later

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C13223 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - story scale

Compared with 10 years ago how is this person at following a story in a book or on TV

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C13216 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - telephone number recall scale

Compared with 10 years ago how is this person at remembering his/her address and telephone number

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C13224 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - decision scale

Compared with 10 years ago how is this person at making decisions on everyday matters

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
C13217 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - date recall scale

Compared with 10 years ago how is this person at remembering what day and month it is

Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.