CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Mitochondrial Disease Mitochondrial Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Mitochondrial Disease Mitochondrial Disease
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Mitochondrial Disease Mitochondrial Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Mitochondrial Disease Mitochondrial Disease
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16174 Menopause indicator

Indicates whether participant is currently menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant is post-menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C13766 Imaging brain acute infarct anatomic site

Indicates the anatomic brain region of the acute infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C13786 Imaging chronic infarct present indicator

Indicates presence of chronic infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C13761 Imaging acute infarct count

The number of acute infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C15910 Assessment date and time

The date of participant's injury

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
C18027 Comment text

Provide any additional information that pertains to the question

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16008 Birth control indicator

Indicates if participant uses birth control

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19019 Imaging acquisition type other text

The free-text field related to 'Imaging acquisition type' specifying other text. Type of imaging acquisition

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C15569 Imaging shimming procedure type

Type of shimming procedure (method used prior to the operation of the magnet to eliminate inhomogeneities in its field) performed on the MRS

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.