CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C16180	Hormone-related syndrome indicator	Whether the participant/subject has known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16163	Hormone therapy name	The name of the hormone therapy taken by the participant/subject	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16172	Pregnant current indicator	Whether the female participant/subject is currently pregnant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16193	Pregnancy outcome date	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant/subject or the participant/subject's partner	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16164	Hormonal therapy start date	The date and time (if applicable and known) the participant/subject started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16174	Menopause indicator	Indicates whether participant/subject is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16165	Hormonal therapy stop date	The date and time (if applicable and known) the participant/subject stopped hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16167	Given birth or fathered a child indicator	Indicates whether participant/subject has ever given birth or fathered a child	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16176	Hormone therapy indicator	Indicates whether participant/subject has taken hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16159	Family history relative age at onset value	Age the participant's/subject's relative experienced the onset of the disease or disorder	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C16168	Pregnancy self or spouse number	Number of each pregnancy of participant/subject or participant/subject's partner	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16177	Post-menopausal indicator	Indicates whether participant/subject is post-menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16160	Tobacco smoked 100 cigarettes indicator	Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C16178	Post-menopausal cause type	Cause or reason for the post-menopausal period in the female participant/subject	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16170	Menstrual period occurrence indicator	Indicates whether participant/subject has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16179	Post-menopausal surgery date	The date and time (if applicable and known) of the surgery that induced the post-menopausal period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C16171	Menstrual period first occurrence age value	Youngest age the female participant/subject had a menstrual period, otherwise known as the age of menarche	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant/subject was first diagnosed with diabetes mellitus	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C17506	Cardiac MRI result comment text	Results comments on the cardiac Magnetic Resonance Imaging results	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C15520	Genetic testing performed indicator	Indicator whether the subject participated in genetic testing	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C15901	Height percentile value	The participant/subject's height percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
C16173	Pregnancy estimated delivery date and time	The date and time (if applicable) the participant/subject is estimated to deliver the pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.