CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3095-C19577	C19577	Length infant unit of measure	Unit of measure for the length numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19633	C19633	Height pediatric unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59698	C59698	Dietary supplement dose unit of measure	Unit of measure for the dose of the dietary supplement the participant is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C20079	C20079	Mitochondrial disease prior vomit before problem type	Types of problems that frequently occur before vomiting during participant's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20059	C20059	Mitochondrial disease current vomit before problem type	Types of problems that frequently occur before the participant's current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12860	C12860	Cardiac MRI intracardiac finding type	Types of intracardial findings observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20190	C20190	Mitochondrial disease current bloat abdominal distension worse time type	Type, as time of day, at which the abdominal bloating/distension is worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20197	C20197	Mitochondrial disease prior bloat abdominal distension worse time type	Type, as time of day, at which prior abdominal bloating/distension was worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10599	C10599	Parameter map calculation type	Type(s) of parameter maps calculated for the perfusion MRI scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19999	C19999	Imaging white matter tract type	Type related to imaging of the white matter tracts	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60345	C60345	Wearable exercise technology type	Type of wearable exercise technology the participant uses	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20038	C20038	Mitochondrial disease eat type	Type of ways that participant eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60238	C60238	Vitamin level test type	Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20093	C20093	Mitochondrial disease vision change aura experience type	Type of vision change or aura experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 151 - 175 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.