CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2383-C54260	C54260	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type	Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54268	C54268	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score	Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54276	C54276	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score	Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54246	C54246	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3087-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16172	C16172	Pregnant current indicator	Indicator of whether the participant is currently pregnant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16193	C16193	Pregnancy outcome date/time	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59701	C59701	Pregnancy other outcome comment text	The free-text field describing the other comments and outcomes of a pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16163	C16163	Hormone therapy name	The name of the hormone therapy taken by the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20013	C20013	Short stature diagnosis indicator	The indicator related to being diagnosed for short stature or height	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59702	C59702	Polycystic ovarian syndrome diagnosis indicator	Indicator of whether the participant has ever been diagnosed with polycystic ovarian syndrome	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20014	C20014	Growth hormone deficiency diagnosis indicator	The indicator related to being diagnosed for deficiency in growth hormone	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59703	C59703	Sex steroid deficiency cause type	Type of cause of the participant's sex steroid deficiency	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16165	C16165	Hormonal therapy stop date/time	The date and time (if applicable and known) the participant stopped hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16175	C16175	Menstrual period last date	Date of the participant's last menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20015	C20015	Growth hormone treatment indicator	The indicator related to receiving growth hormone	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59708	C59708	Hormone therapy replace indicator	Indicator of whether the participant has taken hormonal replacement therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16168	C16168	Pregnancy self or contribute sperm number	Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20016	C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59712	C59712	Post-menopausal cause type other text	The free-text field related to "Post-menopausal cause type", specifying other text. Type of cause or reason for the post-menopausal period in the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.