CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20243	C20243	Diabetes laboratory diagnosis type	Laboratory indications present at diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20253	C20253	Family history stroke parent type	The type of the participant's parent with a history of stroke	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20302	C20302	Hospital admission hypoglycemia past year total day count	The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20261	C20261	Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator	The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20270	C20270	Insulin basal total daily unit count	The daily total of basal or long acting insulin used by the participant, in units	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59705	C59705	Pre-diabetes diagnosis ever indicator	Indicator of whether the participant has ever been diagnosed with pre-diabetes (impaired fasting glucose, impaired glucose tolerance)	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20278	C20278	Emergency room use past year count	The count of the times the participant used the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59748	C59748	Participant mother pregnancy diabetes status	Status of diabetes for participant's mother during pregnancy	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20286	C20286	911 call hyperglycemia year count	The count of the times that the participant called 911 (or their local equivalent) for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59756	C59756	Insulin inject difficult type	Type of difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20294	C20294	Urgent care clinic use not diabetes related past year count	The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59764	C59764	Medication diabetes SGLT2 inhibitor status	Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59771	C59771	Medication hypoglycemia type	Type of medication taken for hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20244	C20244	Diabetes insulin receive diagnosis indicator	The indicator of whether the participant received insulin at the time the diabetes was diagnosed	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20254	C20254	Family history high cholesterol parent type	The type of the participant's parent with a history of high cholesterol	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20303	C20303	Hospital admission hyperglycemia past year total day count	The total duration, in days, of all of the participant's admissions to hospital for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20262	C20262	Hypoglycemia severe loss consciousness seizure past year indicator	The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20271	C20271	Insulin bolus total daily unit count	The daily total of bolus or short acting insulin used by the participant, in units	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59707	C59707	Hypoglycemia history indicator	Indicator of whether the participant has a history of hypoglycemia	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20279	C20279	Emergency room use hypoglycemia past year count	The count of the times the participant used the emergency room for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59749	C59749	Family history insulin current use indicator	Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20287	C20287	911 call diabetes related other past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.