CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 351 - 375 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C59762	C59762	Medication diabetes GLP-1 agonist status	Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20300	C20300	Hospital admission not diabetes related past year count	The count of the times the participant was admitted to hospital for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20308	C20308	Dietician consult past year indicator	The indicator of whether the participant consulted a dietician in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20267	C20267	Blood glucose test daily frequency	The daily frequency with which the participant checks their blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20276	C20276	Insulin pen use indicator	The indicator of whether the participant uses an insulin pen	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59746	C59746	Glycosylated hemoglobin diabetes diagnosis value	Value of glycosylated hemoglobin (A1C) at diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20284	C20284	911 call diabetes past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59754	C59754	Insulin premix dose	Dose of premix insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20292	C20292	Urgent care clinic use hyperglycemia past year count	The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59769	C59769	Dietician consult count unknown status	Status related to the count of times the participant consulted a dietician is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20242	C20242	Diabetes clinical symptom presentation diagnosis type	Clinical symptoms participant showed at presentation when diagnosed with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20252	C20252	Family history heart problem parent type	The type of the participant's parent with a history of heart attacks, heart failure or other heart problems	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59763	C59763	Medication diabetes DPP-4 inhibitor status	Status related to the use of DPP-4 (dipeptidyl peptidase 4) inhibitor medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20301	C20301	Medical office visit past year indicator	The indicator of whether the participant was seen by a health care provider at a medical office in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20309	C20309	Dietician consult past year count	The count of times that the participant consulted a dietician in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20268	C20268	Insulin current use indicator	The indicator of whether the participant currently uses insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59704	C59704	Hyperglycemia history indicator	Indicator of whether the participant has a history of hyperglycemia (high blood glucose)	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20277	C20277	Emergency room use past year indicator	The indicator of whether the participant has used the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59747	C59747	Glycosylated hemoglobin measure method type	Type of method used to measure glycosylated hemoglobin (HbA1C)	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20285	C20285	911 call hypoglycemia past year count	The count of the times that the participant called 911 (or their local equivalent) for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59755	C59755	Insulin inject difficult status	Status related to difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20293	C20293	Urgent care clinic use other diabetes related past year count	The count of the times the participant used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20253	C20253	Family history stroke parent type	The type of the participant's parent with a history of stroke	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59770	C59770	Medication hypoglycemia indicator	Indicator of whether the participant has taken any medication for hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.