CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1191-C07108	C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07094	C07094	Center for Epidemiologic Studies-Depression Scale (CES-D) - good other people indicator	Indicates how often the subject felt like good as other people in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07102	C07102	Center for Epidemiologic Studies-Depression Scale (CES-D) - happy indicator	Indicates how often the subject felt happy in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07109	C07109	Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator	Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07095	C07095	Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator	Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07110	C07110	Center for Epidemiologic Studies-Depression Scale (CES-D) - get going indicator	Indicates how often the subject felt like he/she couldn't get "going" in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07096	C07096	Center for Epidemiologic Studies-Depression Scale (CES-D) - depressed indicator	Indicates how often the subject felt depressed in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07104	C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07097	C07097	Center for Epidemiologic Studies-Depression Scale (CES-D) - everything effort indicator	Indicates how often the subject felt that everything he/she did was an effort in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07105	C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07098	C07098	Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator	Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07091	C07091	Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator	Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07099	C07099	Center for Epidemiologic Studies-Depression Scale (CES-D) - life failure indicator	Indicates how often the subject felt that life had been a failure in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18146	C18146	Laboratory procedure HDL cholesterol measurement	Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19726	C19726	Laboratory procedure fasting insulin measurement	Measurement of the amount of insulin in the participant's blood when fasting	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19727	C19727	Laboratory procedure fasting C-peptide measurement	Measurement of the amount of C-peptide in the participant's blood when fasting	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19728	C19728	Laboratory procedure VLDL cholesterol measurement	Measurement of the amount of very low density lipoprotein (VLDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18168	C18168	Laboratory procedure total cholesterol measurement	Measurement of the total amount of cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19729	C19729	Laboratory procedure vitamin D twenty five hydroxy measurement	Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood	Exploratory	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19730	C19730	Laboratory procedure microalbumin urine measurement	Measurement of the amount of microalbumin in the participant's urine	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.