CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1818-C19554	C19554	Blood specimen lactate pyruvate ratio status	The status as related to lactate/pyruvate ratio level measured from the specimen's blood serum/plasma sample	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19562	C19562	Biomarker lymphocyte assessment type	Type of biomarker(s) assessed from lymphocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19555	C19555	Biomarker Urine Assessment Type	Type of biomarker(s) assessed from urine samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19563	C19563	Biomarker lymphoblast assessment type	Type of biomarker(s) assessed from lymphoblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19556	C19556	Biomarker cerebrospinal fluid assessment type	Type of biomarker assessed from CSF samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19564	C19564	Biomarker muscle biochemistry assessment type	Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19557	C19557	Biomarker fibroblasts assessment type	Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19567	C19567	Biomarker muscle histology assessment type	Type of biomarker(s) assessed from muscle histology	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19548	C19548	Biomarker Analysis Indicator	Indicator that a biomarker analysis was performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19549	C19549	Biomarker Sample Assessment Type	Type of sample obtained from specimen to assess the biomarker	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19558	C19558	Biomarker leukocytes assessment type	Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19568	C19568	Biomarker myotube assessment type	Type of biomarker(s) assessed nfrom myotubes	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19551	C19551	Biomarker blood plasma specimen assessment type	Type of biomarker(s) assessed from blood serum/plasma samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19559	C19559	Biomark neutrophils assessment type	Type of biomark(s) assessed from neutrophils sample	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19569	C19569	Biomarker genetic assessment type	The types of genetic biomarker from the speciment that were evaluated	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19552	C19552	Blood specimen lactate measurement status	The status related to lactate level measured from the specimen's blood serum/plasma sample	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19560	C19560	Biomarker monocyte assessment type	Type of biomark(s) assessed from monocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19553	C19553	Blood specimen pyruvate measurement status	The status as related to pyruvate level measured from the specimen's blood serum/plasma sample	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19561	C19561	Biomarker platelet assessment type	Type of biomarker(s) assessed from platelets (high OXPHOS) samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12492	C12492	Imaging brainstem abnormal indicator	Indicator of whether the brainstem appears normal or abnormal in the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C08238	C08238	Imaging repetition gap value	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12500	C12500	Imaging corpus callosum type indicator	The condition of the corpus callosum fibers	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C17402	C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C10931	C10931	Imaging quality of images technically satisfactory indicator	Indicator of whether the quality of the images were technically satisfactory	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.