CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20142 Mitochondrial disease swallow problem frequency

The frequency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C10741 Echocardiogram degree of aortic regurgitation status

Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20271 Insulin bolus total daily unit count

The daily total of bolus or short acting insulin used by the participant/subject, in units

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

The participant/subject's head circumference percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C10876 Holter exam mean heart rate

Mean heart rate measured during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07093 Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator

Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C20190 Mitochondrial disease bloat abdominal distension time type

The type, as time of day, at which the abdominal bloating/distension is worse for the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG) administration

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20150 Mitochondrial disease remove food pill esophagus indicator

Indicator of whether participant/subject has food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant/subject used the emergency room for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19549 Biomarker Sample Assessment Type

Type of sample obtained from specimen to assess the biomarker

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12926 Cardiovascular Holter exam premature atrial contraction percentage value

Percent of premature atrial contractions the participant/subject experienced during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07101 Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator

Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C20198 Mitochondrial disease prior abdominal distension cause air stool reason

The reason the participant/subject thought the belly was distended in prior episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20032 Mitochondrial disease nuclear mutation text

The free text field to specify the mitochondrial disease nuclear DNA mutation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19687 Imaging cerebrum component type

Type of cerebrum component

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20158 Mitochondrial disease abdominal pain anatomic site

Select where participant's/subject's abdominal pain is located

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20287 Diabetes related other 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19558 Biomarker leukocytes assessment type

Type of biomarker(s) assessed from leukocytes samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.