CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19563 Biomarker lymphoblast assessment type

Type of biomarker(s) assessed from lymphoblasts samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C17957 Cardiovascular Holter exam premature ventricular contraction number

Number or premature ventricular contractions per 24 hours

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20015 Growth hormone treatment indicator

The indicator related to receiving growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20113 Mitochondrial disease oral regurgitation frequency other text

The free text field to specify frequency of participant's/subject's other oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C20238 Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text

The free text field to provide the other setting when participant/subject confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20073 Mitochondrial disease prior vomit frequency

The frequency of the participant/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20046 Mitochondrial disease special diet affect symptom text

The free text field to specify whether specialized diet affected participant/subject symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19700 Imaging myelination pattern calculated age value

The value calculated for age based on myelination pattern

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12894 Echocardiogram right ventricle diastolic internal dimension (RVIDd) measurement

Right ventricular end - diastolic internal dimension (RVIDd) measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20300 Hospital admission not diabetes related past year count

The count of the times the participant/subject was admitted to hospital for reasons unrelated to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Mitochondrial Disease Mitochondrial Disease
C10724 Echocardiogram performed date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20259 Diabetic ketoacidosis emergency post diagnosis diabetes indicator

The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C12859 Cardiac MRI other cardiac anatomy structure result

Result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C20121 Mitochondrial disease prior oral regurgitation frequency other text

The free text field to specify past frequency of participant's/subject's other oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09603 Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score

The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C16008 Birth control indicator

Indicates if participant/subject uses birth control

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20081 Mitochondrial disease prior vomit green yellow color frequency

The frequency with which the participant's/subject's vomit was green or yellow in prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09365 Hamilton Depression Rating Scale (HDRS) - weight loss patient indicator

Score for the amount of weight loss reported by the participant/subject, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20208 Mitochondrial disease stool blood amount result

The result of blood in the stool, as an amount

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12502 Imaging anterior commissure type indicator

The condition of the anterior commissure

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.