CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1776 - 1800 of 1834

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3133-C60252	C60252	Diagnosis primary clinical mitochondrial disease status	Status of the primary clinical mitochondrial disease diagnosis	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19602	C19602	Genetic test mutation clinical category	The category for the type of mutation in clinical setting	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60150	C60150	Imaging scanner parameter mA value	Number value of the mA image acquisition parameters used for computed tomography imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C08255	C08255	Imaging visual analysis blinded indicator	Indicator of whether the visual analysis was performed blinded to clinical data	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60202	C60202	Imaging spinal cord lesion indicator	Indicator of whether the spinal cord lesions are found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59815	C59815	Audiometry word recognition score	Score for word recognition obtained by speech audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08255	C08255	Imaging visual analysis blinded indicator	Indicator of whether the visual analysis was performed blinded to clinical data	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60210	C60210	Imaging white matter spinal cord anatomic site	Anatomic site where spinal cord white matter is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19689	C19689	Imaging cerebrum lobe anatomic site	Anatomic site of the cerebrum imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59783	C59783	Otoscopy pinna abnormal type other text	The free-text field related to 'Otoscopy pinna abnormal type', specifying other text. Type of abnormal otoscopy finding for the pinna	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10932	C10932	Imaging lesion found indicator	Indicator of whether lesions are found in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60218	C60218	Imaging conus medullaris lesion indicator	Indicator of whether conus medullaris lesion is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19697	C19697	Imaging development malformation heterotopia anatomic site	Type of malformations in development in the heterotopia (presence of a particular tissue type at a non-physiological site)	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C10927	C10927	Imaging inversion time duration	Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59791	C59791	Tympanometry stimulus tone frequency type	Type of frequency of the stimulus tone used in tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12491	C12491	Imaging ventricle abnormality type	The type of abnormality in the ventricles on the image	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C60169	C60169	Imaging development malformation miscellaneous anatomic site	Anatomic site of malformations in development miscellaneous imaging	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C59012	C59012	Imaging MRS sequence type	Type of magnetic resonance spectroscopy (MRS) sequence used	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12504	C12504	Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site	Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60194	C60194	Imaging spine multiple timepoint magnetic resonance imaging perform greater than six count	Count of the number of multiple timepoint spine magnetic resonance imaging (MRI) sessions performed on the participant when greater than six	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59807	C59807	Audiometry threshold pure tone hearing level measurement	Measurement of hearing level threshold obtained by pure tone audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1776 - 1800 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.