CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1057-C12468	C12468	Imaging magnetic resonance imaging performed multiple count	The count representing of the number of Magnetic Resonance Imaging (MRI) sessions performed on the participant/subject	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19616	C19616	Length standard infant use type	Indicate whether WHO or CDC growth charts were used in length Z-score calculation	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20117	C20117	Mitochondrial disease age prior oral regurgitation stop age category	The category of participant/subject's age at end of prior oral regurgitation episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20035	C20035	Height maternal measurement	Measurement of participant's/subject's Mother's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20331	C20331	Mitochondrial disease severe vomit symptom type	The type of symptom that was most severe with the patient/subject's vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20077	C20077	Mitochondrial disease prior vomit episode trigger indicator	Indicator of whether there were particular triggers that induced prior vomiting episodes in participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20290	C20290	Urgent care clinic use past year count	The count of the times the participant/subject used an after-hours or urgent care clinic other than the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12910	C12910	Echocardiogram right atrial pressure measurement	Right atrial pressure measured by echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20174	C20174	Mitochondrial disease prior abdominal pain detail text	The free text field to specify additonal details about participant's/subject's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C18719	C18719	Imaging slice orientation type other text	The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09372	C09372	Hamilton Depression Rating Scale (HDRS) - early morning insomnia indicator	Score for the participant/subject's difficulty, if any, with insomnia in the early morning hours, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20134	C20134	Mitochondrial disease prior burp consistent day to day indicator	Indicator of whether past burping was consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12480	C12480	Imaging cortex-pachygyria thickness measurement	The measurement of cortex thickness, in , of the cortex	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19624	C19624	Head circumference Z score	The number of standard deviations the measured head circimference of the subject/participant is above the mean	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20125	C20125	Mitochondrial disease current burp onset age category	The category of participant/subject's age at onset of current burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20043	C20043	Mitochondrial disease special diet type	Select the type of specialized diet of the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C08238	C08238	Imaging repetition gap value	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C16168	C16168	Pregnancy self or spouse number	Number of each pregnancy of participant/subject or participant/subject's partner	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C01521	C01521	Heart rate	The participant/subject's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20085	C20085	Mitochondrial disease prior stool black indicator	Indicator of whether participant's/subject's stools were black	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20298	C20298	Hospital admission hyperglycemia past year count	The count of the times the participant/subject was admitted to hospital for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20211	C20211	Mitochondrial disease prior bowel movement other treatment text	Indicate whether participant/subject used other treatments for bowel movements in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C17964	C17964	Pulmonic stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.