CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59954 Carbon dioxide ventilatory equivalent ventilatory anaerobic threshold value

Value of the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59704 Hyperglycemia history indicator

Indicator of whether the participant has a history of hyperglycemia (high blood glucose)

Supplemental-Highly Recommended Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C12903 Echocardiogram right ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59914 Gas exhale volume ventilatory anaerobic threshold measurement

Measurement, in liters per minute (L/min), of the volume of gas exhaled (VE) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60175 Imaging visual spectral quality status

Status related to the assessment of the visual spectral quality

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60041 Oxygen uptake unit mass trial recovery start measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C19610 Genetic test result date

The date of reporting of the genetic test results

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C56213 Rest carbon dioxide output measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60001 Carbon dioxide trial start measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C56261 Rest systolic pressure measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60009 Blood pressure diastolic trial start measurement

Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12818 Gene second allele identical indicator

Indicator of whether allele #2 is identical to allele #1

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59969 Oxygen end tidal partial pressure submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59827 Auditory brainstem response threshold measurement

Measurement of the hearing threshold obtained by auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12870 Echocardiogram pulmonic valve stenosis degree status

Status of the degree of pulmonic valve stenosis as assessed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60061 Imaging contrast agent dose unit of measure

Unit of measure for the dose of contrast agent used for the imaging scan

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60017 Heart trial other timepoint rate

Heart rate, in beats per minute (BPM), at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59977 Blood pressure diastolic submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12889 Echocardiogram right ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.