CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3126-C59791	C59791	Tympanometry stimulus tone frequency type	Type of frequency of the stimulus tone used in tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60074	C60074	Imaging diffusion-weighted imaging white matter abnormality anatomic site	Anatomic site of the of the white matter abnormality on diffusion-weighted imaging DWI	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60143	C60143	Imaging brain computed tomography perform multiple status	Status related to whether multiple brain computed tomography (CT) imaging sessions have been performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60151	C60151	Imaging axial plane slice orientation text	Free-text field describing the axial plane slice orientation (e.g., parallel to the OML, parallel to the hard palate, etc.)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60159	C60159	Imaging hemorrhage anatomic site other text	Free-text field related to the location of hemorrhage	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C22866	C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60167	C60167	Imaging brain atrophy anatomic site	Anatomic site of brain atrophy found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60066	C60066	Imaging cortical migration anomaly indicator	Indicator of whether cortical migration anomalies are found within the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13787	C13787	Imaging chronic infarct count	Free-text field to indicate number of chronic infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C10500	C10500	Symptom onset age value	Age when symptoms first experienced	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60062	C60062	Imaging diffusion-weighted imaging sequence type	Type of sequence used for diffusion-weighted imaging (DWI)	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60195	C60195	Imaging study analysis type	Type of imaging study analysis performed	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59808	C59808	Audiometry masking status	Status of masking used in audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Core	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19687	C19687	Imaging cerebrum component type	Type of cerebrum component	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60203	C60203	Imaging spine enhancement indicator	Indicator of whether there is enhancement in the spine imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1626 - 1650 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.