CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59960 Oxygen ventilatory equivalent ventilatory anaerobic threshold value

Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12909 Echocardiogram right ventricular systolic pressure measurement

Measurement of right ventricular systolic pressure estimate obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59920 Oxygen uptake ventilatory anaerobic threshold unit mass measurement

Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60179 Imaging slab slice level anatomic site

Anatomic site of the slab/slice level

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59826 Auditory brainstem response stimulus level measurement

Measurement of the stimulus used for auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60270 Genetic test mitochondrial DNA experimental validation type

Type of experimental validation used for the basis of the evaluation of mitochondrial DNA (mtDNA) genetic testing clinical category

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59928 Oxygen uptake peak predict value

Value predicted, in milliliters per minute (mL/min), of peak oxygen uptake (VO2) during the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60053 Participant subjective status trial 1 end text

The free-text field capturing the participant's description of how they felt at the conclusion of the first exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C57114 Rest time count

Count of the time (in minutes) taken at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental-Highly Recommended Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C11910 Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score

Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59936 Carbon dioxide output oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake of measured carbon dioxide output (VCO2) to the predicted VCO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59896 Work ventilatory anaerobic threshold measurement

Measurement of work, in watts, being expended instantaneously when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C12895 Echocardiogram right ventricular internal dimension end systole measurement

Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10725 Echocardiogram left ventricular posterior wall thickness end diastole measurement

Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60031 Heart submaximal absolute trial end rate

Heart rate, in beats per minute (BPM), at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59991 Breathlessness oxygen uptake peak measure Borg scale

Scale value of breathlessness measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60173 Imaging voxel diffusion reduce area indicator

Indicator of whether the voxel is over an area with reduced (restricted) diffusion

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60039 Work trial recovery start measurement

Measurement of work, in watts, generated at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C19607 Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type

Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.