CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59932 Carbon dioxide output anaerobic threshold measurement

Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60057 Participant recover elapsed time day count text

The free-text field capturing the number count of days after the exercise trials before the participant felt they had recovered from the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12897 Echocardiogram right ventricle end diastolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59892 Time exclude rest submaximal absolute trial complete elapse minute count

Count of total elapsed minutes, excluding rest time, at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59013 Imaging voxel anatomic site type

Type of anatomic site in which the voxel is located (e.g., brain left frontal white matter)

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10727 Echocardiogram left ventricular internal dimension end diastole measurement

Measurement of left ventricular end - diastolic internal dimension (LVIDd) obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C07109 Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator

Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C59940 Respiratory exchange ratio submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) during the Submaximal Absolute Trial to the RER at the attainment of peak VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59798 Acoustic reflex stimulus tone frequency type

Type of frequency of the stimulus tone used in acoustic reflex testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59900 Work oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured work (in watts) being generated to the predicted work (in watts)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60175 Imaging visual spectral quality status

Status related to the assessment of the visual spectral quality

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C19610 Genetic test result date

The date of reporting of the genetic test results

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C07098 Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator

Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C60090 Parameter map calculation other text

The free-text field related to 'Parameter map calculation type', specifying other text. Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59948 Oxygen uptake heart rate ventilatory anaerobic threshold ratio value

Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C60098 Imaging crusher gradient use indicator

Indicator of whether a crusher gradient was used during imaging acquisition

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12818 Gene second allele identical indicator

Indicator of whether allele #2 is identical to allele #1

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59956 Carbon dioxide ventilatory equivalent oxygen uptake peak predict value

Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59916 Gas exhale volume oxygen uptake peak predict value

Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12870 Echocardiogram pulmonic valve stenosis degree status

Status of the degree of pulmonic valve stenosis as assessed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.