CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60247 Biomarker genetic assessment type other text

The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59167 Genotype platform description text

The free-text field describing the genotype platform

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C12663 Family history member with medical condition count

Count of family members with history of medical condition

Supplemental Family History Mitochondrial Disease Mitochondrial Disease
C20231 Mitochondrial disease gastrointestinal symptom result diagnosis text

The free-text field to provide the GI symptoms that lead to a mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20059 Mitochondrial disease current vomit before problem type

Types of problems that frequently occur before the participant's current episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19625 Head circumference standard infant use type

Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20017 Hormone-related syndrome other text

The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20190 Mitochondrial disease current bloat abdominal distension worse time type

Type, as time of day, at which the abdominal bloating/distension is worse for the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60253 Diagnosis primary mitochondrial disease support sign type

Type of sign supportive of primary mitochondrial disease diagnosis

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C01706 Lab test result text

Result of the laboratory test

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C20239 Mitochondrial disease other comment text

The free-text field to provide additional information

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20067 Mitochondrial disease current vomit severe symptom type

Type of symptom that is most severe during the participant's current vomiting episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59714 Sex steroid deficiency diagnosis indicator

Indicator of whether the participant has been diagnosed with sex steroid deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20198 Mitochondrial disease prior abdominal distension cause reason type

Type of reason for past abdominal distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C57974 Laboratory procedure random glucose measurement

Measurement of the amount of glucose in the participant's blood at a random/non-fasting time

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C19718 Dietary supplement indication reason

Reason the participant is taking the dietary supplement

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C09360 Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator

Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C59694 Tachycardia episode unit of measure

Unit of measure for the episode of tachycardia

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C60274 Mitochondrial disease infant formula recommendation type

Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20075 Mitochondrial disease prior vomit episode intensity type

Type of intensity of the participant's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59723 Medication other progesterone current indicator

Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20206 Mitochondrial disease stool blood indicator

Indicator of whether the participant has blood in their stools

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 901 - 925 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.