CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3133-C16197	C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60285	C60285	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn relief text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom relief	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12939	C12939	Cardiovascular Holter exam abnormality significance type	Type of significance of abnormal results of the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20086	C20086	Mitochondrial disease prior vomit abdominal pain before indicator	Indicator of whether the participant experienced abdominal pain before prior vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59734	C59734	Lactose intolerant indicator	Indicator of whether that the participant is lactose intolerant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56433	C56433	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval upper bound value	The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C20218	C20218	Mitochondrial disease medication gastrointestinal problem prior worsen text	The free-text field to specify about which medications made the participant's past GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12843	C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20046	C20046	Mitochondrial disease current special diet affect symptom text	The free-text field to specify whether the current specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19582	C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20177	C20177	Mitochondrial disease prior abdominal pain frequency type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain frequency type', specifying other text. Type of frequency with which the participant had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59161	C59161	Genotype platform name	Name of the genotype platform	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60292	C60292	Mitochondrial disease swallow difficult frequency type other text	The free-text field related to 'Mitochondrial disease swallow difficult frequency type', specifying other text. Type of frequency with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episode total count	Count of the total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20093	C20093	Mitochondrial disease vision change aura experience type	Type of vision change or aura experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60139	C60139	Dual X-ray absorptiometry R3 lateral distal femur bone mineral content value	Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60099	C60099	Imaging pre-existing hardware text	Text description of the hardware implanted or attached prior to an imaging scan	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60340	C60340	Mitochondrial disease pancreatic enzyme replacement therapy indicator	Indicator of whether the participant had pancreatic enzyme replacement therapy indicator	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59695	C59695	Dietary supplement study use day count	Count of days the participant took dietary supplements before or during the study	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09364	C09364	Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator	Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20146	C20146	Mitochondrial disease swallow pain disrupt activity wake type	Type of activity or sleep disrupted by the participant's swallowing pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19555	C19555	Biomarker Urine Assessment Type	Type of biomarker(s) assessed from urine samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60300	C60300	Mitochondrial disease recent change appetite indicator	Indicator of whether the participant has had a recent change in appetite	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21849	C21849	Brief Test of Adult Cognition by Telephone (BTACT) - Median latency time lapse millisecond measurement	Median latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20102	C20102	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop age category	Category of the participant's age at the end of prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.