CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3091-C60247	C60247	Biomarker genetic assessment type other text	The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54632	C54632	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3133-C59102	C59102	Data aggregate-level General Research Use appropriate indicator	Indicator of whether the aggregate-level data is appropriate for General Research Use	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12919	C12919	Cardiovascular Holter exam atrial dysrhythmia type	Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56421	C56421	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator	The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C20231	C20231	Mitochondrial disease gastrointestinal symptom result diagnosis text	The free-text field to provide the GI symptoms that lead to a mitochondrial disease diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C16197	C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20059	C20059	Mitochondrial disease current vomit before problem type	Types of problems that frequently occur before the participant's current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F0806-C09354	C09354	Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score	The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19625	C19625	Head circumference standard infant use type	Indicator of whether WHO or CDC growth charts were used in head circumference Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20017	C20017	Hormone-related syndrome other text	The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20190	C20190	Mitochondrial disease current bloat abdominal distension worse time type	Type, as time of day, at which the abdominal bloating/distension is worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20107	C20107	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn wake indicator	Indicator of whether prior GERD, heartburn, mid-line chest pain, esophageal burning woke the participant from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60112	C60112	Dual X-ray absorptiometry lumbar spine bone mineral apparent density z score	Z-score of the bone mineral apparent density (BMAD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59711	C59711	Temperature measurement anatomic site other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text.	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20160	C20160	Mitochondrial disease current abdominal pain frequency type other text	The free-text field related to 'Mitochondrial disease current abdominal pain frequency type', specifying other text. Type of frequency with which the participant currently has abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C59776	C59776	Allergy text	Free-text field to specify the participant's allergies	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60225	C60225	Organoid type	Type of organoid	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60313	C60313	Mitochondrial disease swallow study result type	Type of result the participant's swallowing study revealed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20115	C20115	Mitochondrial disease current oral regurgitation symptom detail text	The free-text field to specify additional details about participant's current oral regurgitation symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17957	C17957	Cardiovascular Holter exam premature ventricular contraction count	Count of premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60120	C60120	Dual X-ray absorptiometry femoral neck bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the femoral neck	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C15900	C15900	Weight percentile value	Value of the participant's weight percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20168	C20168	Mitochondrial disease current abdominal pain worsen text	The free-text field to specify what makes the participant's current abdominal pain worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.