CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 876 - 900 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20318 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment anatomic site

The anatomic site in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20311 Imaging two dimensional speckle tracking echocardiography ventricle anatomic site

The anatomic site as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20025 Imaging phosphorus magnetic resonance spectroscopy relax spectrum assessment status

The status as related to full relaxed sprectrum being completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment result

The result in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result

The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20026 Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra assessment status

The status as related to ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20320 Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment anatomic site

The anatomic site in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20019 Imaging phosphorus magnetic resonance spectroscopy reproducibility indicator

The indicator related to reproducibility scan of phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20313 Imaging two dimensional speckle tracking echocardiography ventricle radial strain assessment result

The result of radial strain as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20027 Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra second assessment status

The status as related to second ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20321 Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment result

The result in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Mitochondrial Disease Mitochondrial Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Mitochondrial Disease Mitochondrial Disease
Displaying 876 - 900 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.