CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 851 - 875 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20028 Imaging phosphorus magnetic resonance spectroscopy exercise second duration

The duration in seconds of exercise bout completed for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20021 Imaging phosphorus magnetic resonance spectroscopy right leg not assessment reason

The free-text field for reason as related to not assessing right leg in phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain assessment result

The result for global strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C11105 Pulmonary function maximal inspiratory pressure (MIP) result value

Value, in cm H2O, representing the percentage of the predicted normal value of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles

Exploratory Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20022 Imaging phosphorus magnetic resonance spectroscopy not leg assessment reason

The reason as related to not having scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20316 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain assessment anatomic site

The anatomic site in four chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C58646 Imaging phase partial Fourier ratio text

Text field for recording the partial Fourier ratio used

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C02498 Imaging scanner software version number

Version number of the imaging scanner software

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20240 Imaging two dimensional speckle tracking echocardiography assessment date

The date related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C19604 Genetic test experimental validation type

Type of experimental validation for the basis of the evaluation

Exploratory Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20023 Imaging phosphorus magnetic resonance spectroscopy not leg assessment other text

The free-text field for other reason as related to not having scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20317 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain assessment result

The result in four chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20024 Imaging phosphorus magnetic resonance spectroscopy thigh assessment status

The status as related to thigh scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20318 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment anatomic site

The anatomic site in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
Displaying 851 - 875 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.